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hello sickle sister!! i have the exact problem. There are times when im awake for a full week or getting ledd that 2 hours of sleep a night.my problems dont come in my nose though. i have problems with my hands, they are really restless and and i end up staying up all night rubbing my hands together on the bed or a hard surface. its really hard and none of my doctors really understand wats going on but they did give me slepping meds..
i hope ive helped you in some way.. if you find out more info about these problems please let me know.
- peace&<3
Kierra J <3
wow i did not realize this wasrelated to my scd... i have always just considered myself an insomniac, usually if i sleep too long i wake up with a really bad head ache. now i tend to sleep too much, i wake up grogy and and in pain... its really weird but in reading posts here i am realizing its common.
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