Replies to This Discussion

Permalink Reply by B. Jewell on October 1, 2009 at 7:04pm

I've been celibate for some time now (nearly 2 years) and will be until I get married. However, Sickle Cell never hindered my libido or ability to enjoy my sex life before.

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Permalink Reply by Preston on October 2, 2009 at 2:45am

I'm not cautious yet...

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Permalink Reply by Chasidi Poole on November 24, 2009 at 9:38pm

the only time sickle cell has affected my sex life is when I'm having a crisis and even then once pain meds are on board its likely to cross my mind. The only thing that I truly am cautious about is practicing safe sex at all times can't have a baby with sickle cell because my butt was on one or even worse have something worse than sickle cell!

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Permalink Reply by Kim Davis on November 24, 2009 at 10:16pm

Wow! I really am sooooo glad that I found this site! Never in a million years did I imagine that I'd be a part of this type forum, but I love it! I love open, raw and honest dialouge. usually I only get to talk to my sister, who also has SC, about such things. This is great!

Allow me to chime in on this subject ;-)

There have been times where I've gone into crisis immediately after intercourse. Usually this only happened after a really good session where I over-exerted myself perhaps, but it has happened at other times as well. Let me tell you something, it is not a pretty picture going from the throes of heated and passionate love-making to the E.R....not pretty at all!

Thankfully, it is not a normal occurance. Back when I was young and didn't really know any better, it never crossed my mind, but now that I'm 40, I've learned my body so well. I've mastered knee-friendly positions (40 years of SC wear and tear on these joints ain't no joke!...these old knees ain't what they used to be!;-)

If I expect to have one of those 'doozies" of a session, then I will usually take something like Motrin prior to. If for some reason, I don't take anything beforehand, I am quick to take it right away once the fat lady has sung her last note ;-)
The crisis' that I've had after sex have mostly been mild and didn't require hospitalization.

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Permalink Reply by Sickle Cell Warrior on November 26, 2009 at 4:39am

"Knee friendly positions"~ Kim that is such a cool way of putting it. My post orgasmic crises have been mostly mild though, however I have had a couple that led me to the hospital. Usually it was because something else was going on.

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Permalink Reply by Marcus McKinley on November 25, 2009 at 12:39am

yea i went into crises after sex before, it was about 3 years ago, It was very painful. I believe i went to the ER that night. Now a days I always break and get something to drink which i usually keep on my nightstand in close reach.

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Permalink Reply by Sickle Cell Warrior on November 26, 2009 at 4:41am

Another great topic, Mr. Jah,

I'm a very passionate person, so this has been one of the harder things to deal with about sickle cell. It sucks that when you are in the throes of a passionate encounter, you have a greater chance of getting and L2 or higher or even get thrown into a full blown out crises.

Here's the deal, with sex, your heart pumps blood faster through all the veins. Faster blood pumping means that any sickle cells that have been chilling in the corners somewhere causing no problems get flushed into the main bloodstream then smaller blood vessels and start to do their clogging up shit. Other factors include the fact that you are most probably hyperventilating during sex and this drops your oxygen saturation level making your body respond by pumping faster and faster. In addition, you are dehydrating via perspiration and cum so you need to hydrate before and after coitus.

I've had numerous exacerbations after sex. Sometimes even right in the middle, picture this, one minute you are having your orgasmic experience and the next minute are huddling under the covers, cold, joints hurting and pain coursing through your body like crazy. It's like going from 100 mph to 0 in less than 30 seconds. Worst thing ever!

Usually I do like Kim, take some Motrin before hand or right after. Make sure I hydrate and that I"m well rested. As with anything Sickle cell is about balance...even during mattress mambo!

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