We still Hope
Hello my fellow sickle cell warriors,
There is a clinical trial for sickle cell going on in 11 cities in the US right now. It is for kids ages 5-17 with sickle cell. The trial is testing a new medicine made from fish oil. So far it works well and doesn't have any side effects so please sign your child with sickle cell up for this study to help them and to help get this medicine approved. Call the numbers below to see if your child qualifies for the study. You will be paid for your time and travel. Please pass on to parents of children with sickle cell. The cities with the trial and the phone numbers to call to enroll:
Miami, FL 305-243-9431
Gainesville, FL 352-273-5079
Atlanta, GA 404-785-2025
Birmingham, AL 205-638-9435
Houston, TX 832-824-4825
Jackson, MS 601-815-9295
Charleston, SC 843-792-0560
Greenville, NC 252-744-4151
Boston, MA 617-355-7203
Detroit, MI 313-993-8825
Oakland, CA 510-428-3885 ext. 2513
For the health professionals in the forum, the trial is called Dose-Finding Study of SC411 in Children With Sickle Cell Disease. It is sponsored by Sancilio & Company Inc. and here's the link to the trial info https://clinicaltrials.gov/ct2/show/NCT02973360
I'm really excited about this medicine because so far it works really well so if/when it gets approved, we can all have less pain and less often. Please, please share with people who could sign their kids up.
Thanks!
Karen
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Hulloo!
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