Replies to This Discussion

Permalink Reply by Ali on November 18, 2015 at 5:40pm

I would ask my hematologist for her opinion. I would research the facility to see if they are leaders in Sickle Cell Research. I would also research the study director.

Permalink Reply by Carl Kollmer, Pfizer on November 24, 2015 at 9:44am

Thank you for your feedback Ali.  I am curious as to how important it would be for you to get feedback from friends or family and how much their opinions might influence your decision.  Thanks again.  - Carl

Permalink Reply by Carlyle on December 15, 2015 at 10:56pm

I would need data on what trials have been done to date, specifics on how the medication works and what side effects have been seen and are expected. I would also take advice from past and present hematologists. I would not take the opinion of my family or friends into much consideration as they do not have the experience or knowledge of the condition that I do.