Sikcell: People living with Sickle Cell

We still Hope

HOW TO HANDLE

I recently delivered twins and if it wasnt bad enuff to leave one in the
hospital i just found out the other has SCD. ive been reading info on the internet
and very happy i came across this site.

i know im not the only mother that have went through this , my questions is how do i get
over this sad and depressed feeling. i feel like its my fault

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Permalink Reply by stephanie eccles on July 17, 2012 at 10:36pm

Hi Tamekia,

I have not gone through what you have, but as someone who lives with scd I tell you no child blames their parent. We just live with it. It is a disease and it has its bad moments and other really bad moments, but as long as you love your child and are there through it all... there is nothing to be sad and depressed about. Their quality of life has to do with you, you make it great or you don't. So just love your kids and dont make it seem that they cant do it all, because they can.

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Permalink Reply by Tamekia Cardell on July 17, 2012 at 11:02pm

i really appreciate u replying n i cant stop from crying .
you are right i have to be strong so she will know shes no different
from her other siblibgs :( you just hate to think of what your child
may go through. as a parent u want to prevent any danger to them.
i will let go and let god because i know he knows best.

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Permalink Reply by stephanie eccles on July 18, 2012 at 11:19am

I am not a parent yet, but yes thats all you can do, let go and let God. I am speaking from the scd side of things, and it sux it really does, and I also know its never easy for loved ones to see you in pain, but just know the life you build for your babies is about the days they are not sick and that is more important to them. You will be great, just love them.

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Permalink Reply by Ali on July 17, 2012 at 11:39pm

Hello Tamekia,

Congratulations on the birth of your twins. You are blessed and so are both of your twins. As your physicians will soon tell you they can cure infants with a bone marrow transplant. If this does not apply to your baby, don't lose hope.

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Permalink Reply by Tamekia Cardell on July 17, 2012 at 11:52pm

i seen that but the other one has the trait so not sure if
it can be done ..... thank u for replying

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Permalink Reply by Ade Dotun on July 18, 2012 at 1:52pm

Congrats on your twins Tameka, its blessing to have delivered safely because many don't even make it. Just try to take one day at a time and focus on the positive to keep your mind off that sad feeling. God bless

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Permalink Reply by Tamekia Cardell on July 18, 2012 at 1:55pm

thank u soooo much . this site has been very helpful :-)

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Permalink Reply by Caitlyn Territa on July 18, 2012 at 5:01pm

Hi tamekia,
I am not a parent but as far as growing up with scd your child may go through a lot of hard times but as for me, I am just entering my twenties and realizing that I am stronger then most people I know. The best thing my parents could ever do for me is not treating me like a charity case. Don't get me wrong all of my family has been there for me but instead of my parents making excuses for me they pushed me to do more. Don't be depressed bad things make great testimonies!

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Permalink Reply by Caitlyn Territa on July 18, 2012 at 5:01pm

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Permalink Reply by Tamekia Cardell on July 18, 2012 at 6:01pm

you are so right Caitlyn bad things do make great testimonies.
That is one thing i wont forget is to never treat her like a charity csse. i am normally
pretty strong, but thinking of what pain my baby could go thru kills me. thank u so much
for replying it means alot :)

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Permalink Reply by BaileyBelle on July 19, 2012 at 9:00am

Hi Tamekia, I also have scd. Growing up my parents kept my scd secret from everyone. I'm not really sure why. Based on this, I suggest you talk about it like you would anything else with your child, family and friends. SCD is nothing to be scared or ashmed of and once people know about it is easier for them to understand. There will be hard times, but the majority of the time your child will be fine and you won't even realise they have scd.