Sikcell: People living with Sickle Cell

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Hydoxyurea

Is anyone taking it ? And does it work?

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Permalink Reply by MONCEF TOUIJER on June 24, 2011 at 10:35am

i do take it since i was 18, now i'm 33 and i must say that it saved my life. just make sure to save some sperm (sorry i dont know any other word to say it) for your future.

stay strong

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Permalink Reply by rachael boly on June 26, 2011 at 1:55pm

Did u have any aide effects from it? Are u still taking it?

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Permalink Reply by Ade Dotun on June 30, 2011 at 12:35am

i been taking it for a couple of years, tho not constant with it, but i personally haven't noticed any side effects...yet

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Permalink Reply by Darryl Alladice on July 2, 2011 at 11:24pm

For me, it took several weeks before I felt the positive effects of it.

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Permalink Reply by Keenan Murray on June 26, 2011 at 1:30pm

i took it when they were doin the double blind study and at first i didt think it worked, but then i was really going through tough times and they convinced me to give it another try and i have to say it has helpd me alot

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Permalink Reply by rachael boly on June 26, 2011 at 1:54pm

Am trying to make a decision on weather to start or not an having a hard time did u have any adverse effects? Do u still have lots of crisis?

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Permalink Reply by tramaine on July 2, 2011 at 10:38am

i am also taking hydrea 500mg a day i had stop fi awhile but i am back on it it really works

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Permalink Reply by tramaine on July 2, 2011 at 10:39am

alot of b vitamins also helps to stay to the top

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Permalink Reply by Darryl Alladice on July 2, 2011 at 11:23pm

I have been on it for several years and have had significantly less crises.

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Permalink Reply by Lola on July 15, 2011 at 6:12pm

Hi Rachel, I took this and it didnt agree with me, I was taking up to1500mg and took it for almost a year, it made me worse, and it has side affects such as, very dry skin, and thinning hair. I had to stop taking it. However, my brother has SCD also, but it really agrees with him, it has reduced his crises and he has had a better quality of life, hes been taking it for about three years now, he only gets crises periodically now, hope this helps..

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Permalink Reply by Darryl Alladice on July 17, 2011 at 8:10am

For me, it definitely has reduced my crises. But, please, do not simply depend on it slowly. What also helps me is my very good diet; lots of fresh fruits, fresh veggies, lots of clear liquids, and a decent sleep and workout regimen. I go for a bicycle ride once a day, usually at night when it is a bit cooler. Pills alone solves nothing.