Sikcell: People living with Sickle Cell

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Random body swellings

Hello, how is everyone doing out there, hope all is in good health...I was curious to see if any one else gets these random swellings on their body. like sometimes i just wake up and my thigh would be swollen or my arm, fingers etc, but it eventually just goes away by itself....is this just me...

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Permalink Reply by Tracy H. on December 5, 2009 at 2:52am

You are not alone on this. I experience this from time to time in my hands. When I was younger it was almost a daily occurrence in my hands and feet. When the fingers and toes are affected it is known as dactylitis. This happens when the cells clumped up and don't circulate as they should. It could be from your positioning during sleep or your reticulocyte count (immature or broken red blood cells). Try to push lots of fluids esp water to help the cells move around.

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Permalink Reply by Preston on December 5, 2009 at 12:01pm

I haven't notice that. I have noticed that my limbs tend to go to sleep a lot easier than most. I've waken up in the middle of the night b/c one or both of my arms are completely asleep and it feels like they might be at the point of no return. It's actually a funny scene. I get up really fast and start swinginging my limp limb/limbs around feeling really special. Lol! The initial reaction is a little scary though... Like where the bleep are my arms?!?! Lol! Can anyone relate? Did I go too far off of this topic?

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Permalink Reply by Tracy H. on December 5, 2009 at 5:00pm

Preston you are too funny, I do get that extreme numbness and tingling in my arms sometimes when waking up but I contribute it to sleeping terribly; I'm laying in positions and are partially cutting off the circulation. When you wake up try stretching your arms straight out and down.

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Permalink Reply by Keenan Murray on December 6, 2009 at 8:29pm

yea my hands get swole and itchy sometimes randomly, never gave it that much thought until it happens though, alwayz thought it was part of evryday life cuz my mom get tha same way sometimes

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Permalink Reply by Neise on December 14, 2009 at 1:04am

I experience swelling in my hands and stomach. When my hands swell they look like baseball gloves. When my stomach swells I look nine months pregnant and it is a little spooky. When I began to swell I know that I am headed for a terrible crisis and I try to head it off as much as I can.