Sikcell: People living with Sickle Cell

We still Hope

Tips on living independently with sickle cell .

Does any one have and tips on how to live independently are there and programs I could go to because I'm a single mother with sickle cell and it hard for me to work and still be able to pay medical bills with getting transfusions every month. Any suggestions?

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Comment by Pam on June 12, 2014 at 2:28pm: I understand where you are coming from. I'm in a similar situation. The tips I would give is utilize any family support you have and always plan and prepare ahead of time. Whether is be house chores, finances or your time.

Comment by Felicia L Williams on June 12, 2014 at 11:51am: http://www.rarediseases.org/rare-disease-information/resources-tool...

http://www.genome.gov/11008842

http://rarediseases.info.nih.gov/resources/5/support-for-patients-a...

Comment by Ade Dotun on June 12, 2014 at 11:08am: Hello Marissa, welcome to the community. I cant imagine how hard it is to be a single mom with SCD raising a child. Have u looked into possible Medicaid options to help cop with bills? You can also check out the group parents on the site, there are some helpful tips there too. Stay strong and remain blessed.

http://sikcell.com/group/parents