We still Hope
As the leading research platform in rare disease, AllStripes is transforming how families
are involved in development of new treatments. They make it easy for patients and
caregivers to contribute their de-identified medical records to advance research from
home, at no cost. They are considering adding sickle cell disease to their platform but would like to know if they community would make use of it first. See the video below and attached document for more information. Please comment yes below like this post if you would like to see something like this for sickle cell too.