Sikcell: People living with Sickle Cell

We still Hope

P.Allen Jones's Blog (34)

Volunteers Needed For Pain Survey

Sickle Cell Pain Survey

You will be paid a $20.00 gift card for completing this survey.

The University of California San Francisco

Subject: The…

Continue

Added by P.Allen Jones on October 18, 2011 at 4:17am — 4 Comments

Why I Named my book I Only Cry at Night?

Added by P.Allen Jones on October 16, 2011 at 10:44am — No Comments

Faces of Sickle Cell Photo Exhibit

Are you interested in lending your face to a photo exhibit of people living with sickle cell? Check out my blog http://sicklecell-ourvoice.blogspot.com/ and see how you can be included

Faces of Sickle Cell.

Martin Luther King said, "We begin to die the moment we become silent about things that matter." THIS MATTERS

Check it…

Continue

Added by P.Allen Jones on October 7, 2011 at 2:53pm — No Comments

Dr. Oz Raises Awareness About Pain

Dr. Oz didn't realize how much people suffer in pain. Check out my latest blog post and see how he's bring new awareness: Our Voice Dr. Oz Article

Added by P.Allen Jones on October 3, 2011 at 11:31pm — No Comments

Leg Ulcer Clinical Trial

Hey everyone,

I got an email from Urevbu Foundation about a clinical trial being held by the University of Memphis. It is a nutrition study related to hypertention and leg ulcers. If you live in the Memphis, TN area you may be interested.

See info below:

SICKLE CELL NUTRITION STUDY

Low nitric oxide in people…

Continue

Added by P.Allen Jones on September 19, 2011 at 3:05pm — No Comments

ALERT - Pain Medication Recall

According to American Pain Foundation there has been a "voluntary pain medication recall" for mis-labeling.

They say:

"Endo Pharmaceuticals, Inc., and Qualitest, a generic drug manufacturing subsidiary, issued voluntary recalls on June 27, 2011 for certain lots of oxycodone with acetaminophen (Endocet), hydrocodone with acetaminophen…

Continue

Added by P.Allen Jones on July 14, 2011 at 2:27am — No Comments

Meditation May Reduce Pain

In a recent article by Salynn Boyles for WebMD Health News it was discovered that “after just four, 20-minute instructional sessions in mindfulness meditation, most participants in the small study experienced big reductions in pain intensity and unpleasantness of pain.”

In this study researchers recruited 18 healthy young adults who had never…

Continue

Added by P.Allen Jones on May 6, 2011 at 1:22am — 4 Comments

Kidney Infarctions & Renal Failure

BEWARE: People with Sickle-cell who take pain medications need to know the effect on their kidneys.

Read my latest blog post…

Continue

Added by P.Allen Jones on April 20, 2011 at 3:48pm — 2 Comments

Kandi From Housewives of Atlanta Speaks For Us

Added by P.Allen Jones on April 11, 2011 at 12:42pm — No Comments

Speak Out About Pain

Make comments to Institute of Medicine regarding pain care and treatment improvement issues.

See my blog http://sicklecell-ourvoice.blogspot.com/ and follow the link to add your comments.

…

Continue

Added by P.Allen Jones on February 5, 2011 at 12:54am — No Comments

Living

http://sicklecell-ourvoice.blogspot.com/

I was thinking about the new year and all the possibilities of opportunity. I reflected on my hopes for publishing my book (this year), and my desire to maintain good health and strength in order to fulfill new dreams.

All this reflecting…

Continue

Added by P.Allen Jones on January 21, 2011 at 6:37pm — No Comments

I'm Thankful

After the toughest year of my life, I’m thankful.…

Continue

Added by P.Allen Jones on November 18, 2010 at 4:57am — 2 Comments

Calling All Soldiers

I love this video...check out the creator's SCD Soldier Network web site http://scdsoldiernetwork.com/home

https://www.youtube.com/watch?v=X4MyH-Ub9_8&feature=player_embedded

Added by P.Allen Jones on October 26, 2010 at 1:00am — No Comments

Stem Cell Cure?

The airways are popping. The media blitz is in full affect. Massive editorial posts have been sent all over the internet. The word is out. There MAY be a cure for Sickle Cell Disease.

According to a New England Journal of Medicine report dated December 10, 2009, researchers say that a new method of bone marrow transplantation cured nine out of 10 adult patients with sickle cell disease.

Researchers gave 10 patients ages 16 to 45 bone marrow stem cells. They gave… Continue

Added by P.Allen Jones on December 22, 2009 at 11:46am — 6 Comments