Hey, all!
I hope everyone is doing well.
Last week, I took my daughter to her first hematologist appt at Johns Hopkins. She is 9 weeks old and has SS )o: Her hematologist told me that there are new, better treatments for SS coming down the pike, including less complicated bone marrow transplants and safer drugs, and that treatment will be much better for her generation than the preceding generations. However, I forgot to ask him when will those treatments be available. He…
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