Hey, all!



I hope everyone is doing well.



Last week, I took my daughter to her first hematologist appt at Johns Hopkins. She is 9 weeks old and has SS )o: Her hematologist told me that there are new, better treatments for SS coming down the pike, including less complicated bone marrow transplants and safer drugs, and that treatment will be much better for her generation than the preceding generations. However, I forgot to ask him when will those treatments be available. He… Continue

I would like to know if any SCD member of this site has ever participated in a SCD clinical trial. If so, what was the trial; what phase was the trial in, and what was your experience. Also, if you have never participated or inquired about a clinical trial, the please share your reason(s) why?



I ask this question because I have a baby girl due in Nov. and my husband and I found out during my 5th month that she will have SCD. I’ll have to post a blog about that whole ordeal some other… Continue

I came across this article the other day and am keeping my fingers crossed that this drug will be proven effective for treating sickle cell crisis.

http://www.reuters.com/article/pressRelease/idUS174025+03-Sep-2009+BW20090903