Sikcell: People living with Sickle Cell

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Pain in her body

My daughter has had pain in her body everyday for last 6 weeks. She reports the pain level to be 7-9 . Has anyone else had this experience?

Pam

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Permalink Reply by P.Allen Jones on February 15, 2013 at 11:08am

Pam, has your daughter's doctors offered any help for her pain?

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Permalink Reply by Pamela Jones on March 14, 2013 at 9:29am

She was taking pain meds but the pain kept coming. Then the doctors said maybe the pain meds are causing her pains so now she takes nothing and suffers through it. Her pain now is an 8 all the time and she has not been able to go to school regularly since this new change

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Permalink Reply by Austyn Hart-Tinsley on February 15, 2013 at 5:02pm

yea all the time not much you can do you can try treating the spot with heat packs warm baths light massage and deep breathing if that doesn't help the drs but that's never any fun.

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Permalink Reply by Cheryl Long on March 13, 2013 at 2:41am

Try taking chlorphyll and wheatgrass juice daily. Take a swig of chloryphll and a teaspoon of wheatgrass powder mixed with water several times per day. Chloryphll makeup is just like blood only it lacks iron. Wheatgrass is high in chloryphll but the combo of chloryphll and wheatgrass is best. Also soymilk has something in it that acts like teflon and helps keep the blood from sticking together. Also a vegetarian diet. No artery clogging meats and fats. Lots of green juice daily. Lots of water. My daughter has SC disese and has occassional pain that may last two days and its over. Even if she has pain her oxygen levels are a 100 percent and she has never been hospitalized. You may have to adjust dosage as she gets older. My child is now seven.

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Permalink Reply by stephanie eccles on March 13, 2013 at 1:36pm

Hi,

I have moderate SS and lately i have had crisis' that send me to the hospital and lats for almost 2 weeks

I have in the past had some that lasted for about 4 weeks however the one that lasted the longest - approximately 2 months - not really a crisis for all that time, the crisis was over after 4 weeks or 5 but then i got a blood clot in my leg that had me in pain for the other weeks.

i am sorry she has been in so much pain for so long. IV's always help me as crisis' are mostly due to the blood being dehydrated...

like others said, heating pads, fluids and get her to eat something, i know i lose my appetite all the time when i am sick. Pray and just keep her calm and don't be too worried about her, she's strong and she will get through it :o) God bless!