Sikcell: People living with Sickle Cell
We still Hope
I was Wondering has any one been told that there not in pain that there just ther for the pain meds?
Hello every one my name is Veon now when i was younger i did'nt have too many problems with sickle cell as far as pain crisis went, But it seem like after i turned twenty things have been not so good. shortly after i turned twenty i got pneumonia and what made it worse i was in a pain crisis at the same time. Well last year alone i went to the hospital over 40 times. Well this year is better but at the begining of this year i went to the hospital and my doctor came in and said that your blood looks good so i dont know why your here, i responded cause im in pain in a respectfull tone. So she said to me i bet you cant wait to get diloted then she left the room. So the nurse came in the room and gave me the pain meds. Well the next day the doctor comes back and she says to me i think your addickted to the pain meds then i went off on her but i kept it respectfull i told her that i have all the pain meds that im receving from the hospital at my house i even have some meds that are stronger. But im not the tpye to take pain meds cause of the way they make me feel i get all loopy like. I have to be crying before i take anything. SO IF THERE'S ANY ONE WHO'S GONE THROUGH MY SITUATION THE FEEDBACK WOULD BE NICE GOD BLESS AND YOU HAVE A WONDERFULL
Replies to This Discussion
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Permalink Reply by Veon A. McGlory on
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I enjoy living life to by no means am i addited to anyting. My boyfriend will tell you i dont take pain meds. its just when i do go to the hospital the nurses know me and the doctors know me only because i go to the e.r. about five times a year. Its my regular doctor that told me that only because she has friend that lives in new york that lives with sickle cell and she never goes to the hospital so she was comparing me to her friend. God Bless you
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Permalink Reply by Myra Davis on
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ive learned how to deal with "minor" pain at home. i use the bengay patches where ever the pain is, and take excedrin pm's to go to sleep while my body rests. it works 90% of the times. and i always remember my dad saying "dont wait until it gets worse". so if i know im not going to get some sort of relief at home i head to the grand ol hospital.
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Permalink Reply by Darin Adams on
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The reason for this response is , alot of people get addicted to the drugs that are used to combat the problems we face when a crisis arise. So they have to make sure
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Permalink Reply by Delli on
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UGH i thought it was only me. Kinda why I stopped going to the hospitals. Every time you go to the hospital they treat you like they're doing you a HUGE favor....like they have to sneak you the drugs I'm so glad that my neighbourhood clinic can give me the meds and sometimes oxygen.
LOL @ you being respectful...I need to learn how to do that when I'm in a crisis cause LORD HAVE Mercy i turn into ms. hyde...and a small cause of tourettes
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In the 70's was when they found out that I had sc, even then they looked at you crazy,they even thought that I was mental. So pay them no mind, they don't have to walk the path that God has choosen for you. remember this sc is not for you but for the glory of GOD who can do all things. God is the great comfort
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I JUST JOINED THE SITE SO IM A YEAR LATE BUT, I WAS NEVER IN THE HOSPITAL UNTIIL I WAS AROUND 20 AND IT GOT WORST FROM THERE, I THINK ALL SICKLERS WHO ARE GROWN DEAL WITH THE UR A DRUG ADDICT BECUASE SOME PEOPLE ARE JUST STRAIGHT IGNORANT... HOWEVER I USE TO BE LIKE IM NOT GOING TO THE HOSPITAL CUZ 1 MY FAMILY THOUGHT I WAS GOING TO MUCH AND THEN U GET DOGGED BY DOCTORS AND NURSES ON HOW MUCH MEDICINE U NEED AND THEN THEY THINK YOUR FINE CUZ YOUR NODDING OF OR SLEEP..THEY ALWAYS SAY OH WELL U MUST FEEL BETTER CUZ UR SLEEPING I REALLY REALLY WANT TO SAY BACK NO DUMB BITCH IM SLEEP CUZ I JUST GOT 2MG OF DILUADID AND 50MG OF BENYDRYL ALL THRU MY PORT BUT IM AWAKE NOW AND THIS SHIT HURT...BUT I DONT WANT TO GET THE IGNORANT BLACK PERSON....NOW I DONT CARE WHAT ANYONE THINKS CUZ THEY DONT KNOW MY DAILY STRUGGLE IF U THINK IM NOT IN PAIN OR IM ADDICTED OKAY THATS FINE BUT YOU ARE GONE MEDICATE ME OR ILL BE SCREAMING AND CRYING REALLY LOUD AND IF U DISCHARGE ME ILL BE BACK. BUT ALL SICKLERS SHOULD FIND A DOCTOR WHO UNDERSTANDS MY HEMATOLOGIST HERE IN AZ IS NOT WAT I LOOK FOR IN A HEMATOLOGIST SO IM LOOKING FOR A NEW ONE BUT MY PRIMARY CARE DOC IS SOOOO GREAT I CAN CALL HIM B4 I GO TO THE ER AND HE HAS ORDERS FOR ME WHEN I GET THERE THEN HE WILL COME SEE ME IN THE MORNING AND IF I HAPPEN TO GO TO THE OTHER HOSPITAL DOWN THE ROAD HE CALLS THERE AND WILL SEND HIS WIFE WHO IS A DOCTOR AT THAT HOSPITAL. SO PLZ PLZ ALL MY SICKLERS FIND A GOOD DOC AND DONT STAY IN PAIN CUZ OF WHAT SOMEONE ELSE THINK...SCREW THEM ALL, ONCE THEY SEE U ADVOCATE FOR YOURSELF AND U JUST DONT TAKE WAT THEY GIVE YOU THEY WILL ALL COME AROUND. GOD BLESS YOU ALL!!!
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Permalink Reply by P.Allen Jones on
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Hey Veon, as a joke keep a copy of Time magazine issue March 1, 2011 "Understanding Pain" with you when you go to the doctor/hospital.
If anyone questions your pain or your need for meds, whip out the magazine and let them "borrow" it. They'll get the message.
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Permalink Reply by Austyn Hart-Tinsley on
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I go through that all the time. Every time I go to the ER or the hospital I have to have my dad come and check on me. I know that’s weird but the Dr refuse to treat me sometimes and think I’m addicted, as well as they think I’m a druggy looking for a fix. I hate taking meds like the next person because I can’t think straight, I feel nauseas and I fall asleep at random. My BF thinks it’s funny to see me on pain killers because I get so loopy. I even heard one of my nurses one time tell the Dr She didn’t want to give me meds because she thought I was a druggy. That pisses me off so bad. They have no idea what its like to look healthy and feel like crap.
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Permalink Reply by Diana Arevalo on
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This week the same things have happened to me. I have never ever had a doctor act suspicious of me before. I went to the hospital for the second time that dau because the first time I was released prematuraly by a doctor that didn't know what he was doing. The second time around the doctor was going to discharge me but i felt that my body wasn't ready to be discharged. I felt that there was a very high potential that the pain was going to come back. I told the doctor that I would feel better if i stayed under observation that night because i didnt feel like i was stable enough. Needless to say the doctor was fighting against me on that. I have never had a doctor oppose to a decision like that before. She would look at me and say " Unless there is something you are not telling?" She told me that if I stayed in observation the admitting doctor would probably not give me any pain meds. What!!! Even if I had pain?!
The next day the admitting doctor stopped giving me pain meds through IV and tried giving me methadone: a pain med used when normal pain medications dont work and is most commonly used in patients that are withdrawing from drugs. So aside from the fact that I am mid crisis and oral pain meds don't even do the slightest thing to me hes treating me as though i am withdrawing from pain meds!
I signed the papers to be released from that hospital and took an hour trip to another hospital.
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Permalink Reply by nicole peterson on
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YESSSSSSSSSSSSS. OMG. Beleve it or not i was born with sickle cell but wasn't diagnosed until the age of 27 when i was pregnant with my first child. so for most of my life i was told i just wanted drugs, there was nothing really wrong with me, and also the infamous question "did you fall and hit something?" like i wouldn't remember falling.... when i was younger i would have crisis all the time but no one knew what was wrong with me.. my mother thought it was authuritis...one day she took me to the doctor and after he examined me he asked my mom to step out in the hall..he told her nothing was wrong with me and i just wanted some attention...my mom was furious because she knew that wasn't true we left and never went back.
i have experienced nasty doctors several times i was even told to get a note from my ss doctor or i wouldnt be treated without it... its really frustrating when you are in pain and no one believes you
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Permalink Reply by AnnetteK on
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A nurse once asked me to visit my hematologist often instead of the ER. I had a bad ulcer due to taking meds i guess. One day she chooses to give me morphin straight through the vein at a great speed like as if she was flushing the vein the next thing everything is blurry, i was seeing light, i couldnt speak i became mute. They decide to call my doctor, i can see her from far like she was in clouds. I have never been this scared in my life. All i could hear was the nurse screaming "speak", stop acting. Some nurses can be mean, i treat them well with respect because i work with patients too and i know the feeling, but that was worse day of my life.
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Permalink Reply by stephanie eccles on
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omg... this happened to me once before... the nurses weren't mean or anything but no one could understand what happened. I was scared and so were they, they called in so many doctors. It was so creepy. It was like they were all in slow motion and apparently I was speaking like I was in slow motion. That's something I would not like to experience ever again.
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