January 2021
What's in your genes
video
What's in your genes
1 Like
A professor's SCD rap
video
A professor's SCD rap
1 Like
Parent & Child Interview Research Opportunity
I GOT THIS EMAIL BELOW FROM A SUPPORT GROUP....not sure if its legitimate, but check it out. There's payment for your efforts.
~~~~~~~Message begins here:
Just a quick note to let you…
Blog
Parent & Child Interview Research Opportunity
1 Like
December 2020
Weird Cravings?!
Have any of you had weird cravings that you just cant beat? I been trying to beat them since god knows when I went and asked the doc why I was doing this weird stuff and shes like that's a part of ha…
Discussion
Weird Cravings?!
2 Likes
What do you when you know your partner has an addiction to the pain meds?
So as many of you and those of you that don't know I have sickle cell. But what is new in my life is the my current boyfriend and childhood friend also has sickle cell. We have been together for a…
Blog
What do you when you know your partner has an addiction to the pain meds?
2 Likes
wife of sickle cell patient
Hello Warriors, my name is Chevi and my husband has sickle cell disease. I think it is really important to have this kind of support system. recently read an article on the internet by Dr. Oji Agbai.…
Blog
wife of sickle cell patient
1 Like
September 2020
FEAR
Perhaps the most important thing we can undertake toward the reduction of fear is to make it easier for people to accept themselves, to like themselves.
~Bonaro…
Blog
FEAR
1 Like
Say Something
It deeply saddens me that there are so many of us who still suffer in silence. I know what its like to feel like you are all alone in the struggle to be well, maintain, manage and cope with having…
Blog
Say Something
1 Like
A question for the younger men and women with SCD
Hello everyone..I am a parent of a 17 year old son with SCD type SS. He has had a fairly healthy life thus far. He has had his gall bladder removed, pnuemonia twice and two pain crisis in his…
Blog
A question for the younger men and women with SCD
1 Like
I hope all is well
Hello Everyone:
I hope all is well with your health. I haven't been on for a while I am doing well with my health. I have been busy with my kids all of there fundraisers from…
Blog
I hope all is well
1 Like
August 2020
Reese responds to all the "WELCOMES" from the community
I just came home from being in the hospital for 8 days. i feel much better now on a scale of 1 to 10 my pain level is about a 4 which is tolerable for me i am hardly ever completely pain free…
Blog
Reese responds to all the "WELCOMES" from the community
1 Like
FLU SHOT
GOT MY FLU SHOT TODAY!!! NOW I AM HAVING A CRISIS REALLY DON'T WANT TO SPEND THE NIGHT AT GRADY ACUTE CARE CENTER TONIGHT !!!!!!!!!!! PRAYING THE PAIN WOULD GO AWAY!!!!
Blog
FLU SHOT
1 Like
July 2020
Draw my life~ @lovelyti
video
Draw my life~ @lovelyti
1 Like
This blog is to tell you a little bit about myself and my daughter Kennedy.
Kennedy is 2 years old she has sickle cell SS. I'm up here to talk to people that need someone to talk to and also to hea…
This blog is to tell you a little bit about myself and my daughter Kennedy.
…
Blog
This blog is to tell you a little bit about myself and my daughter Kennedy.
Kennedy is 2 years old she has sickle cell SS. I'm up here to talk to people that need someone to talk to and also to hea…
3 Likes
June 2020
Angry
Angry or am I just being irrational, Im 16 its 5:15 and I cant seem to catch some sleep
Uncontrollable emotions followed by an uncontrollable pain
As I write tears are flowing, and I can…
Blog
Angry
2 Likes
May 2020
Thanks
Thanks for the blog I have a 5 year old and 1 year old cousin who have Sickle Cell really badly.
Blog
Thanks
1 Like
January 2020
How to assist a friend with Sickle Cell
Hi, I have a female friend with Sickle Cell. She goes in and out of the hospital several times per year. She has a good support system. She has a college education, a full time job and she is a…
Blog
How to assist a friend with Sickle Cell
1 Like
November 2019
Spilled Milk - full documentary
video
Spilled Milk - full documentary
1 Like
October 2019
My thoughts during a painful night
I lie wide awake in my bed unable to get a wink of sleep or even stay in one place for 30 seconds. Freezing cold and shivering even though I'm sweating with clammy skin and the room is 78degree. The…
Blog
My thoughts during a painful night
1 Like
September 2019
Need Help Create Awaremess About Sickle Cell
Need Help , Hello Guys I am Suffering from Sickel B thal , i was not knowing that this is the bigest Deases. in Feb 2010 i married to a girl , i did updated that i have blood cell issue , however…
Blog
Need Help Create Awaremess About Sickle Cell
1 Like
August 2019
First Post
ITS IS WOUNDERFUL FINDING THIS WEB SITE, I'M 45 MALE WHO HAS BEEN LIVING WITH THIS ALL MY LIFE, IVE BEEN TO VERY LOW POINTS AND NOW I'M RIDING HIGH FREE FROM MAJOR PAIN EPISODES. SO I WOULD TELL…
Blog
First Post
1 Like