Sikcell: People living with Sickle Cell

We still Hope

Ade Dotun's Likes

February 2021

insurance coverage Do you guys find it hard to get Medical Insurance when you have sickle cell? I have a friend who may be traveling.… Blog insurance coverage 1 Like Men Using Hydroxyurea Are you able to or have you had any kids while on or after using it? Really curious. I want to have children. Discussion Men Using Hydroxyurea 1 Like

January 2021

As far as dating goes How long should you wait to tell the person your in a relationship that you have sickle cell? Are you wrong for wanting to wait a while to see how things work out in the relationship before you tell… Discussion As far as dating goes 1 Like Are sicklers 'brighter' in academic work tha… Upon being told that my son had SCD, i had many advisers, sypathisers etc but i never expected anyone to tell me that at least i didnt have to worry about my child being 'dull' at school. I have come… Discussion Are sicklers 'brighter' in academic work tha… 1 Like Chronic Leg Ulcers Friends, I would love you to share your thoughts on this issue. I am 40 years old and seriously afflicted with massive ulcers on both the medial and lateral side of the left ankle. What has been mo… Discussion Chronic Leg Ulcers 1 Like Our own thoughts can be healing Do you think that thoughts are responsible for feelings or would you argue that feelings bring about thoughts? According to Cognitive Behavioral Psychology, the first assumption is true. Not only… Blog Our own thoughts can be healing 2 Likes Venting session

Hi everybody. I am having a rough week and just need to vent, especially to those who "feel my pain." My pain crises began on Tuesday morning. Both my arms are in a lot of pain. From my…

Blog Venting session 1 Like How does having Sickle Cell affect your Social & Dating life????

Hola Everyone,

I was just wondering how your social and dating lives are affected by…

Blog How does having Sickle Cell affect your Social & Dating life???? 3 Likes What's in your genes

video What's in your genes 1 Like A professor's SCD rap

video A professor's SCD rap 1 Like Parent & Child Interview Research Opportunity I GOT THIS EMAIL BELOW FROM A SUPPORT GROUP....not sure if its legitimate, but check it out. There's payment for your efforts.

~~~~~~~Message begins here:

Just a quick note to let you… Blog Parent & Child Interview Research Opportunity 1 Like

December 2020

Weird Cravings?! Have any of you had weird cravings that you just cant beat? I been trying to beat them since god knows when I went and asked the doc why I was doing this weird stuff and shes like that's a part of ha… Discussion Weird Cravings?! 2 Likes What do you when you know your partner has an addiction to the pain meds?

So as many of you and those of you that don't know I have sickle cell. But what is new in my life is the my current boyfriend and childhood friend also has sickle cell. We have been together for a…

Blog What do you when you know your partner has an addiction to the pain meds? 2 Likes wife of sickle cell patient Hello Warriors, my name is Chevi and my husband has sickle cell disease. I think it is really important to have this kind of support system. recently read an article on the internet by Dr. Oji Agbai.… Blog wife of sickle cell patient 1 Like

September 2020

FEAR

Perhaps the most important thing we can undertake toward the reduction of fear is to make it easier for people to accept themselves, to like themselves.

~Bonaro…

Blog FEAR 1 Like Say Something

It deeply saddens me that there are so many of us who still suffer in silence. I know what its like to feel like you are all alone in the struggle to be well, maintain, manage and cope with having…

Blog Say Something 1 Like A question for the younger men and women with SCD

Hello everyone..I am a parent of a 17 year old son with SCD type SS. He has had a fairly healthy life thus far. He has had his gall bladder removed, pnuemonia twice and two pain crisis in his…

Blog A question for the younger men and women with SCD 1 Like I hope all is well

Hello Everyone:

I hope all is well with your health. I haven't been on for a while I am doing well with my health. I have been busy with my kids all of there fundraisers from…

Blog I hope all is well 1 Like

August 2020

Reese responds to all the "WELCOMES" from the community I just came home from being in the hospital for 8 days. i feel much better now on a scale of 1 to 10 my pain level is about a 4 which is tolerable for me i am hardly ever completely pain free… Blog Reese responds to all the "WELCOMES" from the community 1 Like FLU SHOT GOT MY FLU SHOT TODAY!!! NOW I AM HAVING A CRISIS REALLY DON'T WANT TO SPEND THE NIGHT AT GRADY ACUTE CARE CENTER TONIGHT !!!!!!!!!!! PRAYING THE PAIN WOULD GO AWAY!!!! Blog FLU SHOT 1 Like