March 2021
Something 2 Think About
The French writer Montaigne said, "The most uncouth of our afflictions is to despise our being." Sometimes we let it slip by us to not allow our high standards to defeat us! For what spurs you to…
Blog
Something 2 Think About
1 Like
new friend
hi. iam happy to find this wep .i,m 34 years i have sickle cell with three brothers one of them died this years . i hate to bee yellow eyes and face . i hop thate you can accept me with you and share…
Blog
new friend
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February 2021
Stem Cell Research
Today me and my family entered a study conducted at NIH on stem cell research.We have a 20 month old baby with Sickle Cell SS and we currently are expecting a baby in February that we dont know the…
Blog
Stem Cell Research
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hi
hey im , new here and i hope to enjoy the new experience.
Blog
hi
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My Admissions Paper
I’m pursuing thisprogram as a part of my goal to create a positive impact among the people of mycommunity in relation to the fields…
Blog
My Admissions Paper
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Sickle Cell Travel Hacks
I traveled recently and found myself in a bit of pain from the cold on the plane (I should have known better and brought a blanket or hoodie) I eventually got a blanket and took some medicine and was…
Discussion
Sickle Cell Travel Hacks
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insurance coverage
Do you guys find it hard to get Medical Insurance when you have sickle cell? I have a friend who may be traveling.…
Blog
insurance coverage
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Men Using Hydroxyurea
Are you able to or have you had any kids while on or after using it? Really curious. I want to have children.
Discussion
Men Using Hydroxyurea
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January 2021
As far as dating goes
How long should you wait to tell the person your in a relationship that you have sickle cell? Are you wrong for wanting to wait a while to see how things work out in the relationship before you tell…
Discussion
As far as dating goes
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Are sicklers 'brighter' in academic work tha…
Upon being told that my son had SCD, i had many advisers, sypathisers etc but i never expected anyone to tell me that at least i didnt have to worry about my child being 'dull' at school. I have come…
Discussion
Are sicklers 'brighter' in academic work tha…
1 Like
Chronic Leg Ulcers
Friends,
I would love you to share your thoughts on this issue. I am 40 years old and seriously afflicted with massive ulcers on both the medial and lateral side of the left ankle.
What has been mo…
Discussion
Chronic Leg Ulcers
1 Like
Our own thoughts can be healing
Do you think that thoughts are responsible for feelings or would you argue that feelings bring about thoughts? According to Cognitive Behavioral Psychology, the first assumption is true. Not only…
Blog
Our own thoughts can be healing
2 Likes
Venting session
Hi everybody. I am having a rough week and just need to vent, especially to those who "feel my pain." My pain crises began on Tuesday morning. Both my arms are in a lot of pain. From my…
Blog
Venting session
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How does having Sickle Cell affect your Social & Dating life????
Hola Everyone,
I was just wondering how your social and dating lives are affected by…
Blog
How does having Sickle Cell affect your Social & Dating life????
3 Likes
What's in your genes
video
What's in your genes
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A professor's SCD rap
video
A professor's SCD rap
1 Like
Parent & Child Interview Research Opportunity
I GOT THIS EMAIL BELOW FROM A SUPPORT GROUP....not sure if its legitimate, but check it out. There's payment for your efforts.
~~~~~~~Message begins here:
Just a quick note to let you…
Blog
Parent & Child Interview Research Opportunity
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December 2020
Weird Cravings?!
Have any of you had weird cravings that you just cant beat? I been trying to beat them since god knows when I went and asked the doc why I was doing this weird stuff and shes like that's a part of ha…
Discussion
Weird Cravings?!
2 Likes
What do you when you know your partner has an addiction to the pain meds?
So as many of you and those of you that don't know I have sickle cell. But what is new in my life is the my current boyfriend and childhood friend also has sickle cell. We have been together for a…
Blog
What do you when you know your partner has an addiction to the pain meds?
2 Likes
wife of sickle cell patient
Hello Warriors, my name is Chevi and my husband has sickle cell disease. I think it is really important to have this kind of support system. recently read an article on the internet by Dr. Oji Agbai.…
Blog
wife of sickle cell patient
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September 2020
FEAR
Perhaps the most important thing we can undertake toward the reduction of fear is to make it easier for people to accept themselves, to like themselves.
~Bonaro…
Blog
FEAR
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