Sikcell: People living with Sickle Cell

We still Hope

Ade Dotun's Likes

June 2021

The Hibiscus Study The Hibiscus Study™ is inviting adults and adolescents 12 to 65 years old with a clinical diagnosis of sickle cell disease (SCD) to take part in a clinical research study. The primary purpose of the… Discussion The Hibiscus Study 2 Likes Sickle Cell Trials for South Florida residen… Hi my name is Rachel I work for a research facility in Miami, Florida. We are very passionate in helping fight the battle against SCD. The current trials are as follows: Duration: 14 weeks Inclusion… Discussion Sickle Cell Trials for South Florida residen… 1 Like

May 2021

Sickle Cell Studies in Miami, Florida

Currently, there are a few different clinical studies for sickle cell disease. Must live in South Florida. To prequalify or to receive more info go to …

Blog Sickle Cell Studies in Miami, Florida 1 Like

April 2021

Cure Research I was wondering what the latest research is on the treatment for sickle cell anemia. Has there been any discoveries in being closer to a cure? -Adriana Blog Cure Research 1 Like Seems like my health is getting worse with age, anyone else?

I am 30 years old now and it seems like I'm in the hospital every other month. In my teens and twenties I was great, virtually now problems and no hospital visits! Now, I'm a mother of 2 and…

Blog Seems like my health is getting worse with age, anyone else? 1 Like Help! Advice wanted!

My 13 months old was diagnosed with SC last week. I am reading and learning as this is all new to me. I would appreciate any advice regarding nutrition, medication etc. Drs prescribed daily…

Blog Help! Advice wanted! 1 Like Spleen Sequestration.. is there a way to reverse it? Hello, im new here and hope i can find help. my child is sickle cell diseased. he is my only child so far. he developed a spleen sequestration at 12 months then again another one at 15 months (last… Blog Spleen Sequestration.. is there a way to reverse it? 1 Like Chronic Pain.

I am a 26 yr. old female living with SCD (SS). I have read many things on Type (SS) being most common and most severe form of sickle. For the past 3 almost 4 months to this day, I have had crisis…

Blog Chronic Pain. 1 Like uhhmmmmm... hey? Sup, i dont usually blog but i guess ill atleast tell u bout myself. Im 19, currently goin to ITT Tech for associates in visual communications, Im a real laid back person, it takes alot...ALOOOOOOT… Blog uhhmmmmm... hey? 1 Like This stupid disease Hi everyone, I am Nikki I am new to this. I have hgb SS. I am a 36 year old female. Ihave had 4 strokes, and I have CHF and have compression fractures in my back. I live in the Washington DC metro… Blog This stupid disease 1 Like

March 2021

Hello Guys Hello everybody,am going through a serious heartbreak and am so dead over emotional...i just need some blunt advice to move on.have been in pain since and i just need help to move on with life. Blog Hello Guys 1 Like How dangerous is low haemoglobin? Hi everyone. Hope we are all in good health. Please when dealing with blood levels,how low is terribly low. My HB is usually around 6.6 or my highest is 7 during the good times and i have a heavy… Blog How dangerous is low haemoglobin? 1 Like Something 2 Think About The French writer Montaigne said, "The most uncouth of our afflictions is to despise our being." Sometimes we let it slip by us to not allow our high standards to defeat us! For what spurs you to… Blog Something 2 Think About 1 Like new friend hi. iam happy to find this wep .i,m 34 years i have sickle cell with three brothers one of them died this years . i hate to bee yellow eyes and face . i hop thate you can accept me with you and share… Blog new friend 1 Like

February 2021

Stem Cell Research Today me and my family entered a study conducted at NIH on stem cell research.We have a 20 month old baby with Sickle Cell SS and we currently are expecting a baby in February that we dont know the… Blog Stem Cell Research 1 Like hi hey im , new here and i hope to enjoy the new experience. Blog hi 1 Like My Admissions Paper

I’m pursuing thisprogram as a part of my goal to create a positive impact among the people of mycommunity in relation to the fields…

Blog My Admissions Paper 1 Like Sickle Cell Travel Hacks I traveled recently and found myself in a bit of pain from the cold on the plane (I should have known better and brought a blanket or hoodie) I eventually got a blanket and took some medicine and was… Discussion Sickle Cell Travel Hacks 2 Likes insurance coverage Do you guys find it hard to get Medical Insurance when you have sickle cell? I have a friend who may be traveling.… Blog insurance coverage 1 Like Men Using Hydroxyurea Are you able to or have you had any kids while on or after using it? Really curious. I want to have children. Discussion Men Using Hydroxyurea 1 Like