June 2014
Sickle cell and money
Let's just say it's a must that you have some type of income with this disease, because those pain killaz don't come cheap. Even if you have insurance...we all know insurance these days is high. You…
Discussion
Sickle cell and money
1 Like
have you ever lost someone to sickle cell?
My night today was brief and I was having fond memories about my late sister who died on 22nd Jan. 2007 at 45, and I just thought why not share the poem you wrote her with your new friends: I want to…
Discussion
have you ever lost someone to sickle cell?
1 Like
Patient Care
So I know that if you want anything done right you have to do it yourself... (motto for control freaks) but i want to put that aside for one minute and ask a question....
is it wrong to think that…
Discussion
Patient Care
1 Like
Rest In Peace - JayAre
Rapper JayAre from the group Cali Swag had passed last week due to complications from his Sickle Cell. He would have been 26 this week.. It's so scary to hear things like this and i think it reminds…
Discussion
Rest In Peace - JayAre
7 Likes
Hello! Just wanted to introduce myself.
Hello everyone! My name IS Ann and I am new to this site. I am a 38 yr old mother of three. I have Sickle Cell Anemia (SS). My oldest child Justin was also born with (SS) due to his father being a tr…
Discussion
Hello! Just wanted to introduce myself.
5 Likes
April 2014
Things nurses & doctors say
video
Things nurses & doctors say
2 Likes
March 2014
January 2014
Speaking, Teaching, Living
Every one of us can do something. Educate our doctors, teachers, and family. We don't have to just take the "treatment" we receive. We CAN do something to help the cause of telling the…
Blog
Speaking, Teaching, Living
2 Likes
Bone marrow transplant
I am excited to share the good news with you all, my 6 year old daughter got a bone marrow transplant on 24th May 2012 and it was a success. Her big brother was the donor and he matched her 100%. W…
Discussion
Bone marrow transplant
3 Likes
Sickled Sisters Blog
Happy New Year, everyone! :)
I would like to share something with the group...
My good friend and I have been working hard to write a blog that shares the experiences of living with Sickle Cell Ane…
Discussion
Sickled Sisters Blog
2 Likes
Robert Mackey Interview during fundraising w…
video
Robert Mackey Interview during fundraising w…
2 Likes
December 2013
My Sickle Cell Foundaton & Initiatives
video
My Sickle Cell Foundaton & Initiatives
1 Like
Newbie on board!
Hey!
I'm Neke. I'm new to this site and I am glad that I found it. Since childhood I have always felt alone with this disease being as though my cousin and I are the only ones in the family that have…
Discussion
Newbie on board!
3 Likes
Get to Know Me... :)
I've been a member of this site for over a year now. I really enjoy reading through people's posts and giving my input where I see fit, but after all of this time, I am realizing that I have never…
Blog
Get to Know Me... :)
2 Likes