Sikcell: People living with Sickle Cell

We still Hope

Ade Dotun's Likes

April 2023

Stacey

Member Stacey 2 Likes

July 2022

On The Other Side Of Through That's the title of my new Blog Post at my sight....http://1chanceonly-bigdaddy54.blogspot.com/ hope we can get a discussion going about some of this. Maybe it will help someone. Blog On The Other Side Of Through 1 Like Beware of Sedenafil (Revatio) Study for Sickle Cell Halted Don't know if you are familiar with this study on the effects of sedenafil on Pulmonary Hypertension? Pass it… Blog Beware of Sedenafil (Revatio) Study for Sickle Cell Halted 1 Like Some Good Things Turn Our Not So Good I just posted on my site that after my hospital stay a week ago I had to go back to have my Port looked at. Find out what happened and join in on the conversation at the link… Blog Some Good Things Turn Our Not So Good 1 Like Day 5 At Sickle Cell Camp View my blog and you will read about my hospital adventure as well as the Sickle Cell Camp in Los Angeles. Click on the link below.

http://1chanceonly-bigdaddy54.blogspot.com/ Blog Day 5 At Sickle Cell Camp 1 Like How Do I Feel I place a new post on my blog. Since I am recuperating from the hospital, I thought I would talk about this subject. Hope you can join in on my comment… Blog How Do I Feel 1 Like

May 2022

INCESSANT PAIN Hi warriors, I had one of the worst crisis Nov last year and was hospitalised for about a month, ever since I've been experiencing constant pain in most of my joints. I take Pentazocine injection… Blog INCESSANT PAIN 2 Likes

April 2022

My Uncle works with medicines, and helps research treatments and cures....he found this for me... There are two Trials that they are testing on Sickle Cell patients, look them up on Google for more information about these trials, also you can directly contact the investigators by using the phone… Blog My Uncle works with medicines, and helps research treatments and cures....he found this for me... 1 Like Anyone use these products? <a href="https://healingblendsglobal.com/collections/sickle-cell">https://healingblendsglobal.com/collections/sickle-cell</a> Is it good for those with beta thallesmia minor? I gotta fight to move, I tire down very easily... Discussion Anyone use these products? 1 Like All body pain

Have any of you ever had pain in many spots before that made it hard to get out of bed or even just get around your home? I have AVN, RA, and SCD (SS) and yesterday it took me 4 hours to get out…

Blog All body pain 1 Like

March 2022

my daughter Dear All,

I am fairly new to this site. I joined because i have a daughter with sickle cell. she is 10 months old and has had one crisis. It wasn't too severe, we were admitted for one night… Blog my daughter 1 Like

February 2022

what i think.

i think we need a blood count machine of some kind, a hand held something so that we could check our blood count at least once a week because it's not fun going to the hospital and have to wait…

Blog what i think. 3 Likes

January 2022

BukkyAde-cartoon

photo BukkyAde-cartoon 1 Like My Life with Sickle Cell Disease I have started a daily blog about my life, check it out at:

http://livingwithsicklecelldisease.blogspot.com/ Blog My Life with Sickle Cell Disease 1 Like me So today I thought was a,good day went to class and then came,home went to.sleep when I woke up my srms and legs hurt really bad I couldnt even feed my son Blog me 1 Like living with sickle cell I believe my daughter has a mild case of Sickle Cell, compared to me. I pray to God she does not have to endure the severe pain that comes with having a pain crisis. She has been hospitalized a few… Blog living with sickle cell 1 Like STRESS and SCD My SCD is acts up very easy when i get stress and it gets really bad really fast. I am a full time student, employee and Girlfriend. Its hard for me to stay calm and not stress. Just small worry give… Discussion STRESS and SCD 1 Like

December 2021

Is there any assistance for us living with s… Any benefits we can apply for? My insurance is too expensive and I was wondering if we're able to receive any assistance in this matter? maybe cheaper insurance or free check ups or something of that… Discussion Is there any assistance for us living with s… 1 Like When experiencing a crisis, what are the tre… My wife receives Morphine, I V Fluids and two units of blood if needed. Discussion When experiencing a crisis, what are the tre… 1 Like HYDROXYUREA I REALLY DONT GET THE WHOLE HYDROXYUREA CAUSE I'VE BEEN ON IT FOR ABOUT 4 YEARS ON AND OFF BUT I DONT SEE ANY IN PROVEMENT CAUSE I'M STILL IN THE ER ABOUT 3 TO 4 TIMES A MONTH ANS ADMITED IN THE… Blog HYDROXYUREA 1 Like