Sikcell: People living with Sickle Cell

We still Hope

Ade Dotun's Likes

January 2022

me So today I thought was a,good day went to class and then came,home went to.sleep when I woke up my srms and legs hurt really bad I couldnt even feed my son Blog me 1 Like living with sickle cell I believe my daughter has a mild case of Sickle Cell, compared to me. I pray to God she does not have to endure the severe pain that comes with having a pain crisis. She has been hospitalized a few… Blog living with sickle cell 1 Like STRESS and SCD My SCD is acts up very easy when i get stress and it gets really bad really fast. I am a full time student, employee and Girlfriend. Its hard for me to stay calm and not stress. Just small worry give… Discussion STRESS and SCD 1 Like

December 2021

Is there any assistance for us living with s… Any benefits we can apply for? My insurance is too expensive and I was wondering if we're able to receive any assistance in this matter? maybe cheaper insurance or free check ups or something of that… Discussion Is there any assistance for us living with s… 1 Like When experiencing a crisis, what are the tre… My wife receives Morphine, I V Fluids and two units of blood if needed. Discussion When experiencing a crisis, what are the tre… 1 Like HYDROXYUREA I REALLY DONT GET THE WHOLE HYDROXYUREA CAUSE I'VE BEEN ON IT FOR ABOUT 4 YEARS ON AND OFF BUT I DONT SEE ANY IN PROVEMENT CAUSE I'M STILL IN THE ER ABOUT 3 TO 4 TIMES A MONTH ANS ADMITED IN THE… Blog HYDROXYUREA 1 Like sickle cell intense hip pain I'm having intense hip/buttock pain that I can't move my leg without painkillers, does anyone know anything about this type of sickle cell pain? I have sickle cell beta thallesmia minor and my whit… Discussion sickle cell intense hip pain 1 Like Corporate Work and Sickle Cell I recently graduated from college and began working full time in consulting. I get up at 6 *cough 7* and usually dont get home until about 6/7pm. I've been trying to get a consistence sleep schedule… Discussion Corporate Work and Sickle Cell 1 Like

September 2021

Daily pain after a 13 YEAR hiatus... im going through a rough time right now, i have sc type and i am having my first real.....id say battle with my sickle cell, for the past 9 months now ive been trying to get my pain under control aft… Discussion Daily pain after a 13 YEAR hiatus... 1 Like 001

photo 001 1 Like Hello There I just joined this website not to long ago. I'm so happy I found out it to be able to connect with others with Sickle Cell disease is great. Especially since I'm the only one in my family with the… Blog Hello There 1 Like Life Insurance. Got turned down AGAIN for life insurance -_- I don't know if its just my country (Bahamas) that's gay or what but shit that FUCKED up. Discussion Life Insurance. 1 Like

August 2021

Poem. I have sicklecell -by Bart Hak Miss Yumi, I have a disease too you know, is what you said When I told you about what kind of man I am. It’s called sickle cell anemia, Is what was told to me I looked it up and saw what price was o… Discussion Poem. I have sicklecell -by Bart Hak 1 Like People asking you for your medication I have had problems throughout my life where people in my life have come to me and asked for some of my medication. In most cases there is absolutely nothing wrong with them, they want it for… Blog People asking you for your medication 1 Like Dealing with fear/paranoia about getting rea… Hi All, I just found this website today and had a question: are any of you really fearful of having severe crises, and if so, how do you deal with it? Let me explain. I am a 23 year old female who… Discussion Dealing with fear/paranoia about getting rea… 1 Like Hate what the Pain Meds make you say... What did I Just Say? I hate when you have no inhibitions when on big doses of pain meds(Narcs) and when you come off them u realize u said something u shouldnt have said or was embarrsing and then u just wanna run away… Blog Hate what the Pain Meds make you say... What did I Just Say? 1 Like

June 2021

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photo fd3b82c4-be9c-4b80-8589-352c18766821 1 Like Worried Mommy

Hello. My husband and I just adopted our precious son, Markelle Isaiah, who has SCD, SS. He's 3 weeks old, so he hasn't had any symptoms yet. We didn't know much about SCD until Markelle joined…

Blog Worried Mommy 2 Likes The Hibiscus Study The Hibiscus Study™ is inviting adults and adolescents 12 to 65 years old with a clinical diagnosis of sickle cell disease (SCD) to take part in a clinical research study. The primary purpose of the… Discussion The Hibiscus Study 2 Likes Sickle Cell Trials for South Florida residen… Hi my name is Rachel I work for a research facility in Miami, Florida. We are very passionate in helping fight the battle against SCD. The current trials are as follows: Duration: 14 weeks Inclusion… Discussion Sickle Cell Trials for South Florida residen… 1 Like

May 2021

Sickle Cell Studies in Miami, Florida

Currently, there are a few different clinical studies for sickle cell disease. Must live in South Florida. To prequalify or to receive more info go to …

Blog Sickle Cell Studies in Miami, Florida 1 Like