Sikcell: People living with Sickle Cell

We still Hope

Ade Dotun's Likes

July 2016

Chocolate in Sickle Cell disease - a clinica…

video Chocolate in Sickle Cell disease - a clinica… 3 Likes

June 2016

Just joined for my kids sake Hello, We are missionaries in East Africa (originally from Oregon) and have adopted two children with sickle cell disease. The first one we took in was very sick but we did not know what with. After… Discussion Just joined for my kids sake 1 Like Sickle Cell Research: Need Support

Dear Members,

The students of the Sobey School of Business , Halifax , Canada are doing some research into the issues which affect those afflicted by Sickle Cell Disease…

Blog Sickle Cell Research: Need Support 2 Likes

May 2016

Do's & don't, things you learned the hard wa… I'm looking for some insite on things I should know raising my baby with SCD-SS. I have never dealt wuth anything like this. I only know what I've read. Which doesnt tell you much of how to help keep… Discussion Do's & don't, things you learned the hard wa… 4 Likes 12111945_821553001323914_900826886320967237_n

photo 12111945_821553001323914_900826886320967237_n 3 Likes Live life to the fullest...or lost? For so long I have keep me having sc to myself but my doc. told to get online to better educate myself and thats when I found this network for people like myself. I never did the support group thing… Blog Live life to the fullest...or lost? 2 Likes

April 2016

February 2016

RadioNext.tv

photo RadioNext.tv 1 Like Do members understand how new medicines for… I am curious about the general level of knowledge about the process for developing new medicines. For example: -The three phases of clinical trials (phase 1, 2, 3), -The process for informing partici… Discussion Do members understand how new medicines for… 1 Like Really helpful website for Sickle Cell infor… Hello Sickle Cell friends, I've been a part of chronic disease communities for a while now and the amount of support that the community offers to each other always amazes me. These past couple of wee… Discussion Really helpful website for Sickle Cell infor… 1 Like Sickle cell trait in football players Dear Parents: I understand that if you have a sickle cell disease kid you may not be too concerned about your sickle cell trait kid's symptoms. However, you may have heard that some sickle cell trai… Discussion Sickle cell trait in football players 1 Like

January 2016

Can't walk. need to talk. Have you ever had one of those times where one or both of your knees would hurt? you would bend them just so they feel better but as your keeping them bent they start to stay like that and as you try… Discussion Can't walk. need to talk. 1 Like More Evidence! Once more and again... Sickle Cell can be controlled with NATURAL remedies but our FDA want to label them as UNSAFE and LIMIT your RIGHT to use them! ASK YOURSELF WHY!? <a href="http://articles.mercola.com/s">http://articles.mercola.com/s</a>… Discussion More Evidence! 1 Like Reflecting on 2011, and a happy 2012!' Today is December 31st 2011, and as I look ahead, I'm happy for what 2012 will bring. But, as I look back on 2011, for the first time in decades I'm weeping with joy at what it brought me too!1-It w… Discussion Reflecting on 2011, and a happy 2012!' 1 Like Giving Back I received this email from the sickle cell foundation so I thought I would share in case anyone was interested. MIXED CHICKS "GIVE BACK" TO SICKLE CELL DISEASE. Mixed Chicks has opened their h… Discussion Giving Back 1 Like

December 2015

That moment when...

video That moment when... 1 Like

November 2015

Observing Households with SCD Anyone know SC'D or thalassemia of Asian, Latino or Middle Eastern diversity? Want to spend time and observe the Day in the Life" of those dealing with condition so I can write better communication… Discussion Observing Households with SCD 2 Likes