November 2016
aviary-image-1417966336793
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aviary-image-1417966336793
1 Like
September 2016
August 2016
Bone Marrow Transplant / Stem Cell Transplan…
Hi All,
This month marks I believe 6 years, since I donated bone marrow to my older sister who had SCD. I have SCD trait.
I didn't see any recent posts, and I've fallen off on this website to be ho…
Discussion
Bone Marrow Transplant / Stem Cell Transplan…
6 Likes
Sickle Warriors Team at Children's National Fundraising Event
Live in the DC area? Please consider joining our SICKLE WARRIORS team to raise funds for the sickle cell disease program at Children's National.
The 5K run/walk Race For Every…
Blog
Sickle Warriors Team at Children's National Fundraising Event
2 Likes
Baby Makes 5 Grandchildren
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Baby Makes 5 Grandchildren
2 Likes
July 2016
How keep your faith....
J how difficult the life can become when we found that our love one born with a special condition. I think everything goes to the floor and you just loose your conscience when the doctor just look at…
Blog
How keep your faith....
1 Like
Chocolate in Sickle Cell disease - a clinica…
video
Chocolate in Sickle Cell disease - a clinica…
3 Likes
June 2016
Just joined for my kids sake
Hello,
We are missionaries in East Africa (originally from Oregon) and have adopted two children with sickle cell disease. The first one we took in was very sick but we did not know what with. After…
Discussion
Just joined for my kids sake
1 Like
Sickle Cell Research: Need Support
Dear Members,
The students of the Sobey School of Business , Halifax , Canada are doing some research into the issues which affect those afflicted by Sickle Cell Disease…
Blog
Sickle Cell Research: Need Support
2 Likes
May 2016
Do's & don't, things you learned the hard wa…
I'm looking for some insite on things I should know raising my baby with SCD-SS. I have never dealt wuth anything like this. I only know what I've read. Which doesnt tell you much of how to help keep…
Discussion
Do's & don't, things you learned the hard wa…
4 Likes
12111945_821553001323914_900826886320967237_n
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12111945_821553001323914_900826886320967237_n
3 Likes
Live life to the fullest...or lost?
For so long I have keep me having sc to myself but my doc. told to get online to better educate myself and thats when I found this network for people like myself. I never did the support group thing…
Blog
Live life to the fullest...or lost?
2 Likes
April 2016
February 2016
RadioNext.tv
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RadioNext.tv
1 Like
Do members understand how new medicines for…
I am curious about the general level of knowledge about the process for developing new medicines.
For example:
-The three phases of clinical trials (phase 1, 2, 3),
-The process for informing partici…
Discussion
Do members understand how new medicines for…
1 Like
Really helpful website for Sickle Cell infor…
Hello Sickle Cell friends,
I've been a part of chronic disease communities for a while now and the amount of support that the community offers to each other always amazes me. These past couple of wee…
Discussion
Really helpful website for Sickle Cell infor…
1 Like
Sickle cell trait in football players
Dear Parents: I understand that if you have a sickle cell disease kid you may not be too concerned about your sickle cell trait kid's symptoms. However, you may have heard that some sickle cell trai…
Discussion
Sickle cell trait in football players
1 Like
January 2016
Can't walk. need to talk.
Have you ever had one of those times where one or both of your knees would hurt? you would bend them just so they feel better but as your keeping them bent they start to stay like that and as you try…
Discussion
Can't walk. need to talk.
1 Like