Sikcell: People living with Sickle Cell

We still Hope

Ade Dotun's Likes

November 2016

Speak

“When we speak we are afraid our words will not be heard or welcomed. But when we are silent, we are still afraid. So it is better to speak.” ~Audre…

Blog Speak 2 Likes I'm Coming Out! Lately I've been talking about SC a lot. More than I ever have in my entire life. It is the one thing that I have always avoided and hated talking about.

Back in September I celebrated my… Blog I'm Coming Out! 1 Like aviary-image-1417966336793

photo aviary-image-1417966336793 1 Like

September 2016

August 2016

Bone Marrow Transplant / Stem Cell Transplan… Hi All, This month marks I believe 6 years, since I donated bone marrow to my older sister who had SCD. I have SCD trait. I didn't see any recent posts, and I've fallen off on this website to be ho… Discussion Bone Marrow Transplant / Stem Cell Transplan… 6 Likes Sickle Warriors Team at Children's National Fundraising Event

Live in the DC area? Please consider joining our SICKLE WARRIORS team to raise funds for the sickle cell disease program at Children's National.

The 5K run/walk Race For Every…

Blog Sickle Warriors Team at Children's National Fundraising Event 2 Likes Baby Makes 5 Grandchildren

photo Baby Makes 5 Grandchildren 2 Likes

July 2016

How keep your faith.... J how difficult the life can become when we found that our love one born with a special condition. I think everything goes to the floor and you just loose your conscience when the doctor just look at… Blog How keep your faith.... 1 Like Chocolate in Sickle Cell disease - a clinica…

video Chocolate in Sickle Cell disease - a clinica… 3 Likes

June 2016

Just joined for my kids sake Hello, We are missionaries in East Africa (originally from Oregon) and have adopted two children with sickle cell disease. The first one we took in was very sick but we did not know what with. After… Discussion Just joined for my kids sake 1 Like Sickle Cell Research: Need Support

Dear Members,

The students of the Sobey School of Business , Halifax , Canada are doing some research into the issues which affect those afflicted by Sickle Cell Disease…

Blog Sickle Cell Research: Need Support 2 Likes

May 2016

Do's & don't, things you learned the hard wa… I'm looking for some insite on things I should know raising my baby with SCD-SS. I have never dealt wuth anything like this. I only know what I've read. Which doesnt tell you much of how to help keep… Discussion Do's & don't, things you learned the hard wa… 4 Likes 12111945_821553001323914_900826886320967237_n

photo 12111945_821553001323914_900826886320967237_n 3 Likes Live life to the fullest...or lost? For so long I have keep me having sc to myself but my doc. told to get online to better educate myself and thats when I found this network for people like myself. I never did the support group thing… Blog Live life to the fullest...or lost? 2 Likes

April 2016

February 2016

RadioNext.tv

photo RadioNext.tv 1 Like Do members understand how new medicines for… I am curious about the general level of knowledge about the process for developing new medicines. For example: -The three phases of clinical trials (phase 1, 2, 3), -The process for informing partici… Discussion Do members understand how new medicines for… 1 Like Really helpful website for Sickle Cell infor… Hello Sickle Cell friends, I've been a part of chronic disease communities for a while now and the amount of support that the community offers to each other always amazes me. These past couple of wee… Discussion Really helpful website for Sickle Cell infor… 1 Like