March 2017
February 2017
January 2017
December 2016
November 2016
Speak
“When we speak we are afraid our words will not be heard or welcomed. But when we are silent, we are still afraid. So it is better to speak.” ~Audre…
Blog
Speak
2 Likes
I'm Coming Out!
Lately I've been talking about SC a lot. More than I ever have in my entire life. It is the one thing that I have always avoided and hated talking about.
Back in September I celebrated my…
Blog
I'm Coming Out!
1 Like
aviary-image-1417966336793
photo
aviary-image-1417966336793
1 Like
September 2016
August 2016
Bone Marrow Transplant / Stem Cell Transplan…
Hi All,
This month marks I believe 6 years, since I donated bone marrow to my older sister who had SCD. I have SCD trait.
I didn't see any recent posts, and I've fallen off on this website to be ho…
Discussion
Bone Marrow Transplant / Stem Cell Transplan…
6 Likes
Sickle Warriors Team at Children's National Fundraising Event
Live in the DC area? Please consider joining our SICKLE WARRIORS team to raise funds for the sickle cell disease program at Children's National.
The 5K run/walk Race For Every…
Blog
Sickle Warriors Team at Children's National Fundraising Event
2 Likes
Baby Makes 5 Grandchildren
photo
Baby Makes 5 Grandchildren
2 Likes
July 2016
How keep your faith....
J how difficult the life can become when we found that our love one born with a special condition. I think everything goes to the floor and you just loose your conscience when the doctor just look at…
Blog
How keep your faith....
1 Like
Chocolate in Sickle Cell disease - a clinica…
video
Chocolate in Sickle Cell disease - a clinica…
3 Likes
June 2016
Just joined for my kids sake
Hello,
We are missionaries in East Africa (originally from Oregon) and have adopted two children with sickle cell disease. The first one we took in was very sick but we did not know what with. After…
Discussion
Just joined for my kids sake
1 Like
Sickle Cell Research: Need Support
Dear Members,
The students of the Sobey School of Business , Halifax , Canada are doing some research into the issues which affect those afflicted by Sickle Cell Disease…
Blog
Sickle Cell Research: Need Support
2 Likes
May 2016
Do's & don't, things you learned the hard wa…
I'm looking for some insite on things I should know raising my baby with SCD-SS. I have never dealt wuth anything like this. I only know what I've read. Which doesnt tell you much of how to help keep…
Discussion
Do's & don't, things you learned the hard wa…
4 Likes