Sikcell: People living with Sickle Cell

We still Hope

Ade Dotun's Likes

April 2022

All body pain

Have any of you ever had pain in many spots before that made it hard to get out of bed or even just get around your home? I have AVN, RA, and SCD (SS) and yesterday it took me 4 hours to get out…

Blog All body pain 1 Like

March 2022

my daughter Dear All,

I am fairly new to this site. I joined because i have a daughter with sickle cell. she is 10 months old and has had one crisis. It wasn't too severe, we were admitted for one night… Blog my daughter 1 Like

February 2022

what i think.

i think we need a blood count machine of some kind, a hand held something so that we could check our blood count at least once a week because it's not fun going to the hospital and have to wait…

Blog what i think. 3 Likes

January 2022

BukkyAde-cartoon

photo BukkyAde-cartoon 1 Like My Life with Sickle Cell Disease I have started a daily blog about my life, check it out at:

http://livingwithsicklecelldisease.blogspot.com/ Blog My Life with Sickle Cell Disease 1 Like me So today I thought was a,good day went to class and then came,home went to.sleep when I woke up my srms and legs hurt really bad I couldnt even feed my son Blog me 1 Like living with sickle cell I believe my daughter has a mild case of Sickle Cell, compared to me. I pray to God she does not have to endure the severe pain that comes with having a pain crisis. She has been hospitalized a few… Blog living with sickle cell 1 Like STRESS and SCD My SCD is acts up very easy when i get stress and it gets really bad really fast. I am a full time student, employee and Girlfriend. Its hard for me to stay calm and not stress. Just small worry give… Discussion STRESS and SCD 1 Like

December 2021

Is there any assistance for us living with s… Any benefits we can apply for? My insurance is too expensive and I was wondering if we're able to receive any assistance in this matter? maybe cheaper insurance or free check ups or something of that… Discussion Is there any assistance for us living with s… 1 Like When experiencing a crisis, what are the tre… My wife receives Morphine, I V Fluids and two units of blood if needed. Discussion When experiencing a crisis, what are the tre… 1 Like HYDROXYUREA I REALLY DONT GET THE WHOLE HYDROXYUREA CAUSE I'VE BEEN ON IT FOR ABOUT 4 YEARS ON AND OFF BUT I DONT SEE ANY IN PROVEMENT CAUSE I'M STILL IN THE ER ABOUT 3 TO 4 TIMES A MONTH ANS ADMITED IN THE… Blog HYDROXYUREA 1 Like sickle cell intense hip pain I'm having intense hip/buttock pain that I can't move my leg without painkillers, does anyone know anything about this type of sickle cell pain? I have sickle cell beta thallesmia minor and my whit… Discussion sickle cell intense hip pain 1 Like Corporate Work and Sickle Cell I recently graduated from college and began working full time in consulting. I get up at 6 *cough 7* and usually dont get home until about 6/7pm. I've been trying to get a consistence sleep schedule… Discussion Corporate Work and Sickle Cell 1 Like

September 2021

Daily pain after a 13 YEAR hiatus... im going through a rough time right now, i have sc type and i am having my first real.....id say battle with my sickle cell, for the past 9 months now ive been trying to get my pain under control aft… Discussion Daily pain after a 13 YEAR hiatus... 1 Like 001

photo 001 1 Like Hello There I just joined this website not to long ago. I'm so happy I found out it to be able to connect with others with Sickle Cell disease is great. Especially since I'm the only one in my family with the… Blog Hello There 1 Like Life Insurance. Got turned down AGAIN for life insurance -_- I don't know if its just my country (Bahamas) that's gay or what but shit that FUCKED up. Discussion Life Insurance. 1 Like

August 2021

Poem. I have sicklecell -by Bart Hak Miss Yumi, I have a disease too you know, is what you said When I told you about what kind of man I am. It’s called sickle cell anemia, Is what was told to me I looked it up and saw what price was o… Discussion Poem. I have sicklecell -by Bart Hak 1 Like People asking you for your medication I have had problems throughout my life where people in my life have come to me and asked for some of my medication. In most cases there is absolutely nothing wrong with them, they want it for… Blog People asking you for your medication 1 Like Dealing with fear/paranoia about getting rea… Hi All, I just found this website today and had a question: are any of you really fearful of having severe crises, and if so, how do you deal with it? Let me explain. I am a 23 year old female who… Discussion Dealing with fear/paranoia about getting rea… 1 Like