April 2015
NIH Study for Bone Marrow Transplant
Hi all, I called NIH and have been given an appointment to go to DC all expense paid to be screened for a bone marrow transplant which, if it is successful, will cure me. However, there are risks w…
Discussion
NIH Study for Bone Marrow Transplant
3 Likes
October 2014
Life gets better...
Hey everyone,
It's been ages since i was here(last post was in 2011)...I stopped using my yahoo id for a while and i guess life happened...but I'm happy to be back...A lot has…
Blog
Life gets better...
16 Likes
September 2014
Do's & don't, things you learned the hard wa…
I'm looking for some insite on things I should know raising my baby with SCD-SS. I have never dealt wuth anything like this. I only know what I've read. Which doesnt tell you much of how to help keep…
Discussion
Do's & don't, things you learned the hard wa…
4 Likes
July 2013
September is SC awareness month
Hey I hope ya'll are doing fine!So Sept. is right arounf the corner and I was wondering if you guys are doing anything to promote awareness? At my old school, I wore a pin everyday on the month to sc…
Discussion
September is SC awareness month
1 Like