Hello. My husband and I just adopted our precious son, Markelle Isaiah, who has SCD, SS.  He's 3 weeks old, so he hasn't had any symptoms yet.   We didn't know much about SCD until Markelle joined our family, but we've done tons of research and get the basics of the disease.  More than anything I would love to connect with people who are actually living with SCD and tips from parents of SS children.  I'm feeling a little lost.  Thanks, Erika

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Comment by Lorena Madrigal on June 27, 2013 at 8:58pm

That baby is lucky to have you as his son, just as you are lucky to have him!  You do know that there might be a local SCD association group close to you, right? You can check in their National site: http://www.sicklecelldisease.org/

    All the best to you and your family.

Comment by Ebony on June 6, 2013 at 1:29pm

Hey,

I have a 14 yrs old with SCD, SS, she started getting complains at the age of 4.

they told us that's when it starts to show itself.

Its been a long tough road for us. But with our Faith, we've overcome a lot.

My daughter have been trough many blood tranfusions, Pain crisis, acute chest syndrome and

Now we are preparing for dialysis and after that a bone marrow transplant.

So if u have anything you want 2 ask or share, feel free to mail me

nyeismah@hotmail.com 

Comment by Ade Dotun on May 13, 2013 at 3:05pm

Hello Erika, welcome and i congratulate n commend u on your new baby boy! I would suggest that you join the parents group here to get involved with other parental topics: http://sikcell.com/group/parents

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