Hello Everyone, I was notified on Twitter that the US National Heart, Lung, Blood Institute (NHLBI) is requesting public comment on the "New" treatment guideline for adults with sickle cell disease.

This document tells the medical community "how to treat people with sickle cell" AND it needs to be updated.

"WE" PEOPLE WITH SICKLE CELL" NEED TO HAVE OUR VOICE, IDEAS, COMMENTS added to this important document.

Check out NHLBI website for more info on how to add your comments (or see link below)

• Review and Comment Form, Excel (xls) file, 44 K (Form must be returned by email attachment to scd_guidelines@nhlbi.nih.gov)

This is our chance to tell doctors what "WE" think should be done to treat Adults with Sickle Cell Disease!!!!!!!!!!!!!!!!!!. All comments due before August 31, 2012

(This is the document Management of Sickle Cell Disease - 2002. Needs updating!!!!!!!) 

http://www.nhlbi.nih.gov/health/prof/blood/sickle/sc_mngt.pdf

Thanks everyone for being pro-active about your health and the treatment of people with sickle cell disease.