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Comment by sandra on June 28, 2013 at 2:39pm

Jon I am fully aware that,s also what the doctors assume , that some of patients go to the ER just to get sedated with drugs.When the reality is you are just trying to get some relief from pain ,and I do believe your statement.After a while the meds just stop working.So in this situation what can I do to help.my son is grown 36 so the meds after all of these years to my understanding aren't helping is that a fact. I've asked my son questions but most of the time he doesn't want to talk about it.And he seems to be bitter with me but when he goes through a crisis I've been there for him the best way I know how.All of his life

Comment by Jon on June 28, 2013 at 2:25pm

I just discovered this herb on my last trip home to Africa thanks to my mother (Yes my mom is still much around at almost 80 and strong lol), who really believes in herbs, apparently its been around for a while and its well know its a plant called "Moringa Oleifera" (the "Miracle Tree) it only grows in Africa some parts of South America and India. While I was home I decided to try it out and I must confess I was a bit skeptical cos in my almost 50yrs, I've always believed only modern medicine can help me cos that's all I've known, but then after taking it as Tea in the AM and sprinkling it on food just a "teaspoon full" a day, after a while, I did notice some funny feelings and changes in my body. Because of this my family decided to cultivate over 5 acres of this plant to help in its production. Ours will take some time before its out there, but its already available on the market, I don't know about here in the US. But if any one is interested I can help source for it. Please do your due diligence and Google it! Then let me know. Because I am my Brothers Keeper!

Comment by Jon on June 28, 2013 at 2:00pm

This the story of our life's, we suffer in silence because the powers that be feel were junkies but what they don't know is over time the medications don't work anymore after a while. Do they think we enjoy coming to hospital while life pass us by, rolling in pain? and the most annoying thing is when you hear them say, "You cant be in that much pain" because were not screaming our head off in pain or curled up in fetal position in pain. I remember an episode after ER triage and I was asked what I'm I allergic to and putting a red wrist band on my hand, I was very lucky in that after years of being on my own and no one there with me when I go inn, I've condition my self because of past experience to always ask no matter what the pain level is "what are you giving me" so the Doc now comes inn cos the nurse cant give anything until the Doc writes it, after the doc comes in looks at my chat and file then writes up the meds, nurse now comes in with the meds and here in America meds are injected into your fluids line that goes directly into the blood, that any wrong thing in there and that's lights out for you! So I managed to asked the nurse while I'm rolling in pain and she said, "Morphine" I screamed do you want to kill me! whats the use of this red band on my hand? I've always been allergic to morphine right from London and one day I had an episode and I went to Laurel regional in MD I had a friend with me who was a Licensed Pharmacist working at that time in John Hopkins in Baltimore, this is her first experience seeing me in pain, I could see the tears in her eyes every time I open my eyes, I wasn't crying cos I've conditioned myself, but I was in so much pain cos no one can ever get use to pain no matter how long you've had it, she didn't know what my pain management was and my history but in the ambulance on my way to the ER I had been asked my allergies so that was all ready on the notes, anyway cut a long story short I was given Dilaudid and I was out for the count! I've never had this drug before in my Life, all I remember was a burning sensation like I'm about to die and I was screaming, I'm on Fire! get me water, WATER PLS!! I stated have flashes of my Son & Daughter going in my head that I'm never gonna see them again cos I know I was dieing, but I could here voices saying "his okay now, that's the neutralizer working", when I heard that, I said 'what neutralizer' what the hell are you talking about? Then the white nurse said, "Man you scared us, it was very scary! I'm like what are you talking about, cos all I remember was going of to sleep after they injected the drug into my line and made the mistake of not asking what it was cos I'm thinking well I have a red band on so I okay. Then my friend now narrated what happened, she was scared, within 5 min of administering the drug, I was out and then everything changed, that it took 10 men to restrain me before I could be given the neutralizer, my eyes was like that girl in the exorcist, I couldn't help my self but just laugh as serious as the situation was, so since that day Dilaudid was added to my drug alleges. Now in Laurel regional, this Jewish doc had come in spoke to me asked me what I'm I normally given for my pain and what dose and I told him, Demerol 100mg, decided he was going to to write me up for morphine! after screaming "You want to kill me", the nurse was like what are you talking about that's what the Doc prescribed, 'morphine' still in pain I screamed get the Doc back in here, so he came and I asked him why the hell you write me up for morphine you know I'm allergic to it and his reply was, I decided against demerol and gave a trial dose of morphine to start of with, I'm like are you out of your mind! you want to kill me? and he asked what exactly is my morphine allergy and I'm like, I swell up and have blisters all over, his reply was, "well I cant give you demerol, its either morphine or nothing" lucky I had my cell phone in my pocket, called my older brother at 2am my younger brother was also visiting from NY and told him, 'I'm at laurel and they about to kill me pls come get me!' and that's how I left still in pain and angry, thought I'd rather go home and know that if I die at least I died of pain in my house and not in a place that's suppose to take care of me, now they don't understand that kind of mentality and they will never understand. I tried taking 2 tylenol with acetaminophen 500mg but that never worked and my brothers hard to drive me to Doctors in Greenbelt cos I've been there before and that was how my life was saved. So please know your meds and allergies. And always ask "what are you giving me" if you by yourself, no matter how much pain your in, cos at the end of the day all this docs will say is "were sorry" but then its too late. Pls Don't give up the fight by been vocal at all times until we are heard!.       

Comment by sandra on December 22, 2011 at 9:32pm

Greetings and Happy hoildays to all thank you all also for your advice it it greatly appreciated .... my apologies fior the delayed response from me , but ive not been online for several months

Comment by Kathy Mason on May 18, 2011 at 4:10am

Onions, Oregano and leeks. Try to include these in meals for your son regularly as they are high in anti-oxidants and help to oxygenate the blood.

Comment by Nina on May 17, 2011 at 5:23pm

ENHANCEDNUTRIENTS.COM

Comment by adeka on May 17, 2011 at 5:19pm

nina where do you buy or order hemoxide ?

Comment by adeka on May 17, 2011 at 5:18pm

nina where do you order or buy hemoxide from ?

Comment by Nina on May 17, 2011 at 12:51pm

Sandra, I fully understand and I'm with you on this battle. It seems is easy to just say: Oh they have SCD, then everything is OK. My husband and I keep in constantly fight and luckily we had to be at the hospital only once. My kids are in a very antioxidant diet. They take a juice of berries with dark green leaves vegetables, beets, carrots, garlic, ginger, grapes... Also they are on zinc, Omega complex, folic acid and amino acids supplements. This is working pretty well for my family. My kids also take Hemoxide from enhancenutrients. I only give them one pill daily mixed on their juice. It is worth to try, it may help your son.

Comment by adeka on May 17, 2011 at 10:24am

Sandra, My name is George Adeka from Kenya. I have a 5 Years old Sickler. I underwent what you are going through whenever my daughter had painfull crisis. Nowadays i am a bit relaxed Thanks to Nicosan Herbal treatment. I would recommend you try order for Nicosan from Nigeria. It has helped my daughter a great deal in reducing the crisis occurence and countless transfusion. The herbal drug has no side effects though it has to be taken everday for a lifetime. Try it. I am sure it will help.