Hey everyone, keep up with my Twitter account @pallenj - for important information that needs your comment. 

Soon.....we (people with sickle cell & public) will be allowed to comment on the updated National Heart Lung Blood Institute (NHLBI) 'red book' - The Management of Sickle Cell Disease guideline (see the team working on this now)

This will be OUR CHANCE to HAVE A VOICE to make sure sickle cell "care & treatment" needs are fully addressed. This guideline is for health professionals (& others) to know how to care for (& manage) sickle cell disease.

See full 2002 version of The Management of Sickle Cell Disease guideline. Make your notes and please make YOUR VOICE heard.

I will keep everyone updated on this issue. Finally, sickle cell disease "care & treatment" for adults is priority!!!!!!