Julie
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Julie's Discussions

World Sickle Cell Day

Started this discussion. Last reply by Ade Dotun Aug 26, 2019. 1 Reply

The National Institutes of Health, the National, Heart, Lung, and Blood Institute (NHLBI) in the US says they're on track for a cure within the next 5-10 years Here's the article:…Continue

Hospital Stay Bag

Started this discussion. Last reply by Michelle Oct 13, 2018. 6 Replies

Hi guys! What are your tips and tricks for packing a hospital stay bag that makes you more comfortable? If you can, also include a short checklist of what you usually take with you when you have to…Continue

Addiction and Pain-killers

Started this discussion. Last reply by Ade Dotun Feb 15, 2017. 1 Reply

Does anyone else hesitate to take their narcotic medication because they worry about addiction?  I was recently prescribed a narcotic for the first time because my pain has been progressively getting…Continue

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Ade Dotun replied to Julie's discussion World Sickle Cell Day
"Hopeful"
Aug 26, 2019
Ade Dotun liked Julie's discussion World Sickle Cell Day
Aug 26, 2019
Ade Dotun liked Julie's discussion World Sickle Cell Day
Jul 3, 2019
Julie posted a discussion

World Sickle Cell Day

The National Institutes of Health, the National, Heart, Lung, and Blood Institute (NHLBI) in the US says they're on track for a cure within the next 5-10 years Here's the article: https://www.hhs.gov/blog/2019/06/19/coming-together-to-confront-sickle-cell-disease.htmlGuys how do you feel about this?See More
Jun 19, 2019

Profile Information

How did you find this site?
Web search scd support groups
How has living with sickle cell made an impact on your life?
This is a difficult question to answer in a few lines. But lets see, scd is the main factor behind every thing i do. What i eat, where i go, what i do, what i can/can't do, so i can only say, in a way, it defines me. Unfortunately....
What are you hoping to gain by joining the site?
To connect. I am the only one in my entire family with the full blown disease, SS, and noone in my current circle does or really understands the scope of the illness so, it would be nice to be able to share thoughts, tips, tricks etc.

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At 6:29pm on May 17, 2020, Ade Dotun said…
Happy birthday Julie, hope you are well!
 
 
 

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