Jennifer Wilhoite
  • Female
  • Orlando, FL
  • United States
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Profile Information

Profession
Nurse
Hobbies
Art reading and cycling.
How did you find this site?
on the internet
How has living with sickle cell made an impact on your life?
It has made a great impact on my life. Mainly by doctors telling me that I would not live until I was 20, then 30, then 40, well I am now 50 and I am still here. When I was younger I used to ignore it, until I got sick, and then I would pay the consequences and have really bad sickle cell crisis. I did not join any groups because I was scared to watch people with the same disease as me suffer. And I know they were suffering because having sickle cell is one thing, but when one gets a crisis, "oh my god" the pain is unbearable. All the medicine in the world will not help, and some nurses and doctors do not understand and think you are a junkie when all you want to do is GET OUT OF PAIN. I hate sickle cell disease, he has been an enemy of mine all my life. Whenever the pain affects me, I wish I could just climb out of my body, so I do not have to feel such terrible pain. If I ever get the chance to crawl out of my body without commiting suicide, (when I'm having a crisis), believe me I definitely would. Sickle cell has impacted my life, by losing many jobs. Not being able to have more children. It has impacted my life by I can't even go swimming when I want to, especially at night. There are many things that I can't do because of this disease. Also I have not had supportive parents throughout having this disease. My mom died when I was 5 years old, and my dad pretended my whole life like I was normal and basically ignored the disease. He has had no sympathy for me whatsoever. My sisters and brothers just get on with their lives, they don't care whether I have ssd or not, just so as they themselves do not have it. My daughter died at age 22 because she inherited this disease from me. I felt very guilty about that because I have been waiting to die all my life from this disease, and then my daughter inherits it and dies. HOwever, I was an excellent mother to my daughter, and I took care of her all of her life, I was a very supportive parent and told her that I loved her all the time. It is very sad that she is gone, however, I do not blame her for leaving, because the pain is just too much to bear when one is having a sickle cell crisis. So she checked out of this world and I thoroughly understand why. Even though I am very very very very very very sad without her.
Your Website
http://wilhoitejennifer

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At 7:49pm on December 9, 2018, Ade Dotun said…

Happy birthday Jennifer! I hope you are doing well

 
 
 

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