Janet O.
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  • Lynn, MA
  • United States
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At what age did you have your first crisis?

Started this discussion. Last reply by Jalen Joyceline Sep 11, 2013. 12 Replies

I am new on this board (so thankful I found this site) and have been reading up on all of the information that is available to the members.I have a 1.5 mo baby with SCD (SS) and I wanted to ask those…Continue

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Clinical Associate
How did you find this site?
How has living with sickle cell made an impact on your life?
Finding out my baby boy has sickle cell disease has been one of the toughest moments of my life. I still can't believe my little chugger who looks so healthy and happy has this disease and I worry about the day the symptoms start to emerge. I have made it my goal to get educated about the disease and get acquainted with other individuals who are associated with the disease.

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At 6:19pm on January 23, 2013, Tamekia Cardell said…
I've been in your shoes. Finding out one of my girls having Sickel Cell was devastating. Just as you I started to wonder what pain my baby would go thru. I cried until I couldn't cry anymore , lost about 15 lbs n two weeks.
The day she had her first hemo appointment I felt a relief because when I went in there I realized it could be worse. Email me so we can chat together we can get thru this.


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