I'm new to this website. I've been looking for some support being a mother of a Sickle Cell child. I've been so frustrated with the care he has received over the years, he's 23 yrs old now and it's been a long hard road and it doesn't seem to be getting any better. He is now on monthly blood exchanges and the medical staff are not very friendly. We have to constantly fight every time we go there, where in the U.S. is the best place to get care for SC patients?
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I'm new to this website. I've been looking for some support being a mother of a Sickle Cell child. I've been so frustrated with the care he has received over the years, he's 23 yrs old now and it's been a long hard road and it doesn't seem to be getting any better. He is now on monthly blood exchanges and the medical staff are not very friendly. We have to constantly fight every time we go there, where in the U.S. is the best place to get care for SC patients?