• Female
  • Greensboro, NC
  • United States
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How did you find this site?
Through a facebook group
How has living with sickle cell made an impact on your life?
Sickle Cell has helped me define my strengths and overcome my weaknesses. I've overcome so many obstacles throughout my lifetime and I have a feeling of empowerment. If a person can live with Sickle Cell Disease like I am, they can do ANYTHING!
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At 2:58pm on September 19, 2011, P.Allen Jones said…

Alanna, I got an email from Urevbu Foundation about a clinical trial related to leg ulcers. See info below:


SICKLE CELL NUTRITION STUDY                                                         


Low nitric oxide in people with sickle cell anemia can lead to pulmonary hypertension and leg ulcers.  Carnitine is a nutrition supplement that may raise nitric oxide.  Researchers from The University of Memphis are doing research study that looks at the nitric oxide levels in people with sickle cell anemia.

Who can be on the study? 

  • Adults  between 18-60 years old who have sickle cell (SS).
  •  English speaking
  • Willing to participate and come to the University of Memphis 3 to 5 times to do the test.  
  • Non smoker

What will I have to do?

  • Give a blood sample 3 times. 
  •  Have weight, height, and body fat measured.
  •  Write down food intake 3 times.

 What are the risks?

  • There are no risks related to carnitine. There is a slight risk of infection to having blood drawn.

  What are the benefits?

  • You will help us learn about nitric oxide in people with sickle cell anemia.
  • You will get $20 and a snack each time you have blood drawn/visit.

 How do I participate?

  • Contact Ruth Williams at 901-734-8132 to set up an appointment.



At 9:00pm on July 6, 2009, Ali said…
Wow, what a coincidence. I went natural last fall. Then I cut my hair short. Then shorter,then all off. I have chronic hip and back pain so it made it difficult for me to lean over the sink to wash it. I can't afford to go to a salon weekly. So I decided to cut it. I miss my long hair, but my companion likes it short. Well enough about hair.

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