We still Hope
I am not a parent, I'm 19 years old and I live with sickle cell. Like everyone says, water is key. I try drink a liter of water everyday and most of the time, I do. I'm a water baby, I absolutely loved and still love the water and the beach. I used to get sick and have mini crisis the next day after swimming. The key is don't let your child get too cold. I would never want to get out no matter how cold I got, and I paid for it the next day. My mother could always tell when I was getting sick, so I know a mother has the best intuition. :) My eyes always give it away. She knew that I was getting ill before my body told me that I wasn't feeling well. The whites yellow and if you look at the inside of your eyelid, it should be a redder color but when I get sick its more of a pink. I take folic acid every day to help with the production of red blood cells and I had to take penicillin for the first four years of my life. This does weaken the nature of your teeth so I also have to take fluoride medication. I know I'm not a parent but I really hope that this helps.
as a mom whose learned the ropes ,yes you need water like oxygen. a balanced diet especially protective foods to build immunity, mine takes an orange daily. they shouldn't strain and they need to rest . keep them warm, my girl must always be warmly dressed. have painkillers stocked at home in case of a painful crisis relax as time goes by you will be the expert when it comes to your baby.