Forum Discussions (244)

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HELP!

Hi Everyone, could anyone with a Facebook page please do me a big favor and vote for my mom's business. She has a janitorial company and is…

Started by Pam

0 Jun 16, 2015

Hip replacement at young age

I had osteomyelitis (bone infection) due to a salmonella septicaemia when I was 11 years old, it almost drove me out of life, but fortunate…

Started by Aidin

8 Jun 10, 2015
Reply by Aidin

Pain in knee sometimes

I'm 37 and have sickle cell beta thalessmia, I lift weight 3 times a week and I was wondering what's the pain that I get in my knee? I'm ra…

Started by mike smith

8 Jun 9, 2015
Reply by Darryl Alladice

The use of "oxygen bars"?

Hey all, I posted this video last month about the importance of oxygen when it comes to preventing sickled cells: https://www.youtube.com/w

Started by Ade Dotun

7 May 26, 2015
Reply by Ade Dotun

Medical appliance

Hey, Have one of you heard about chest port? Its a portacath installed beneath the skin only used in hospital for medical use. That people…

Started by Lilly Debby

9 May 15, 2015
Reply by Lilly Debby

NIH Study for Bone Marrow Transplant

Hi all,  I called NIH and have been given an appointment to go to DC all expense paid to be screened for a bone marrow transplant which, if…

Started by dawn denise

2 Apr 29, 2015
Reply by Ebony

Sickle Cell Beta Thalessmia compared to regular Sickle Cell

What's the difference between the two? I have the former... I've been working out and I'm not seeing many gains in the gym, I know this ha…

Started by mike smith

4 Apr 5, 2015
Reply by Jaygo

Pain Detector For SCD Sufferes

I know I don't even have to say/ask this, I kinda already know what all your responses will be, but I am a logical and practical person and…

Started by Jon

9 Apr 5, 2015
Reply by Jaygo

Hydrea

Hallo Anyone taking hydrea here... I am taking it but since i started taking it i dont have pain but I am loosing my hairs... is it one of…

Started by schola

2 Mar 25, 2015
Reply by schola

Hello! Just wanted to introduce myself.

Hello everyone! My name IS Ann and I am new to this site. I am a 38 yr old mother of three. I have Sickle Cell Anemia (SS). My oldest child…

Started by Ann

8 Mar 3, 2015
Reply by dawn denise

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