Sikcell: People living with Sickle Cell

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sickle beta plus thal

I have a 2 month old baby with sickle beta plus thal, the doctors have done genetic testing on my sons dad as he is the one with the beta thal gene, they have predicted that my Son is likley to have a "mild form of sickle beta plus thal” would love to talk with someone who has the same condition or someone who knows wot kinda things to expect....thanx

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Permalink Reply by Damali Knight on March 12, 2013 at 7:47pm

Hello Shenna,

My name is Damali and I have a 17 year old daughter who has beta plus thal and I am also a carrier of the same gene. As far as what to expect everyone is different because I had my first crisis at four and that's when my mother found out I had sickle cell. My triggers for crisis were change in weather, stress, exhaustion, and dehydration. However, my daughter did not start having crisis until the age of 8 or 9 because from the time she was born until the age of 5 she was given daily doses of penicillin to keep her scd at bay and it really helped, the only thing she dealt with as a baby was high fevers, never no crisis or anything like that until she was 9. Since then she only has a crisis once a year or every two years in January or either may and so far she hasn't been sick since 2010. But everyone is different so I would stress that you get your doctor to prescribe penicillin for him/her to take until the age of five.

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Permalink Reply by Cheryl Long on March 13, 2013 at 2:24am

You should try chloryphll and wheatgrass juice every day. A squeeze of chloryphll and a teaspoon of wheatgrass powder mixed in water a few times per day. Also soy milk.

Chloryphll is almost exactlly like blood only it does not contain iron. Wheatgrass is also high in chyloryphll the combo is best. Soymilk makes the veins like teflon and helps to keep the blood from sticking together. Also a vegetarian diet is best no artery cloggging meats and fats. My child has SC disease and gets pain every once in a while but even though she has pain her oxygen levels are good her iron is good and she has never been hopitalized. When she has pain it my last two days and its over.

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Permalink Reply by brianna territa on March 13, 2013 at 4:35am

My sister and I both have sickle beta thal

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Permalink Reply by shenna on March 13, 2013 at 6:26pm

Thanx for ur response, yes my doctor has prescribed penicillin and folic acid already...I'm jus hoping he will be lucky like your daughter and jus have it mild, its so scary not knowing wot to expect,I am gettin over the initial shock of finding out my baby has this, I'm finally jus realising I need to do a lot of research and that my baby is not sick he jus has slightly diffirent needs I'm very grateful for u gettin bac to me