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Permalink Reply by tramaine on September 26, 2009 at 12:00pm

i ask my question because i know livin with SCD can be very painful and scared.but i have learn and accept my SCD beacause its apart of me and i have to live with it no matter what.i am 25 years soon to 26 and i was told i wont live past 12 and today look at me i have bet the odds i have have many blood transfusions i have been hospitalize soo many times in my past.as i got older and learn my SCD more i am more wise now on how to care of my self better i try my best to eat,sleep,drink plenty of water,take my muliti-vitamins,folic acid now for the past 7years of my life i have not been sick.guys and girls we can have take care of ower bodies and be very aware that our immune system is not strong so try stay away from germs.

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Permalink Reply by wael m s awadeen on September 27, 2009 at 3:04pm

WHEN I WAS YOUNG, YES, I ASKED THIS QUESTION. NOW, NO. I AM MARRIED WITH 2 NORMAL KIDS, I FINISHED MY PHD AND NOW TEACHING AT A UNIVERSITY. I DO GO VIA SOME CRISES , ONCE A MONTH BUT I CAN HANDLE MOST OF THEM AT HOME. i STILL GET HOSPITALIZED ONCE O TWICE A YEAR. SINCE I AM A MUSLIM, I FEEL THAT ALLAH IS FAIR AND JUST, HE MADE ME LIKE THID FOR A GODD REASON THA I D NOT KNOW YET. BELIEF IS VITAL IN THE CASE OF SCD.

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Permalink Reply by Trish on September 26, 2009 at 1:05pm

Last summer I was hospitalized for the entire summer, we missed so many family outings and scheduled vacations and I felt totally bad for my husband and children. Thank God they were understanding and did everything they could do to make light of the situation. I felt like my 14 year old daughter had to be a mother to her brothers because I was unable to care for them but she pulled it through. I guess sometimes teenagers do listen. But anywho this is what make me despise my SCD, I know its apart of me and I have embraced that but when it interferes with me being a wife and a mother I just hate that it had to happen to me and that's when I ask, "WHY ME!"

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Permalink Reply by Tracy H. on September 26, 2009 at 11:20pm

Like you mentioned, I feel a large part of it has to do with acceptance. When I was younger, I thought the world was against me, and having SCD was a curse. Now at the age of 23, I have a different perception of life. Instead of being miserable over something I can not control, I am determine to enjoy life and follow through with my dreams. It may be a rough road... but I must keep on moving.

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