Sikcell: People living with Sickle Cell

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Corporate Work and Sickle Cell

I recently graduated from college and began working full time in consulting. I get up at 6 *cough 7* and usually dont get home until about 6/7pm. I've been trying to get a consistence sleep schedule but it's hard. Anywho, I noticed that recently I've been having more pain that usual. I would have two small crisis twice a day for three days in a row. I used only get pain like twice a month

I know im going to have this job for a while so Im wondering how do you guys deal? I know my first step is getting more sleep but what ever can I do? i always wear a sweater so I dont get cold. try to get up so Im not stationary for too long but i can't keep hiding being in pain at work.

I'd appreciate your feedback =)

Bukky

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Permalink Reply by Preston on January 7, 2016 at 10:22am

All of our situations have variables and we have to find what works best for us. I'm still learning and adjusting to the changes. I've been ok getting up at 5:30 and not going to bed til 12ish most nights. My sleep is also often interrupted with priapisms. My body is whacky. I try to make it up by icaasuonally having a day where all I do is chill. It's tough with a 2 and 4 year old tho. Lol

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Permalink Reply by 26wbvi9vzb36s on April 19, 2017 at 11:01pm

Yes! In case things escalate you can at least have a salary.

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Permalink Reply by 26wbvi9vzb36s on April 19, 2017 at 11:03pm

Also after 1yr you'll have FMLA which you can use intermittently as needed when your not feeling up to it. Speak to your HR and they may have a Medical Accommodation they can provide until you become eligible for FMLA and Short Term and Long Term Disability.

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Permalink Reply by Nadia Bodkin on January 4, 2017 at 10:24am

I use reusable clickable heating pads called Repeat the Heat to get through the pain. I have 30 that I bring to the office. I even have a hot plate and a light weight camping pot that I brought to the office (and house it under my desk) in order to reset them so that I don't need to walk with so many. I don't know how I would get through a work day or an errand day or any day really without them.

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Permalink Reply by mike smith on April 18, 2017 at 7:28am

I wake up at 5am, get to work by 830am and get home by 7pm. I'm very. Tired in the morning and usually very sluggish.

I'm beginning to think k I need to get more rest so I can be in enter shape.

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Permalink Reply by Nadia Bodkin on April 24, 2017 at 7:46pm

What I do is carry a bag of reusable heating pads that I activate and stick in my pants around my hips and back throughout the day. The localized heat allows for me to push through the pain. I focus on the heat of the heating pad and it serves as a little distraction and escape for me. I wouldn't be able to work or even do errands without these heating pads. I use the Repeat the Heat brand.