Sikcell: People living with Sickle Cell
We still Hope
Can't walk. need to talk.
Have you ever had one of those times where one or both of your knees would hurt? you would bend them just so they feel better but as your keeping them bent they start to stay like that and as you try to stretch out the pain would explode again? my dad gets mad at me for getting mad at him cause he wont let me move till I am fully recovered I have seen my dad stress over me being in pain he would hold his head and cuss because he was losing his mind on what to do. My mom is not supporting him my little brother is too lazy to help, my big sister has been by my side since day one, and my big brother is just like his mom when it comes to me. I hate the fact that my own mother is wanting to push me away because of something in her own mind set. As I said before I look for support online I don't want anyone to feel sorry for me, one of my friends found out I had sickle cell and she began to act weird around me asking if I could carry my bag or asking if i wanted to take it slow on the stairs. I sat her down to educate her on my sickness, the reason I say My sickness is because this sickness doesn't have me I got it. I live by the wolven rules and if you wanna know what they are just ask and I will tell.
Replies to This Discussion
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Permalink Reply by Ebony Ravenell on
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The wolven rules:
1. Never second guess your self
2. Even tho someone is mean to you its not good to be mean back
3. Never stop till your own mission on this earth is over done and done.
4. Always be the leader and never the follower. (always the alpha never the omega)
5. Protect those dear to you and they will protect you too.
6. Give what you can and take what you are given.
7. Your elders know best
8. As much as you want to break rules try to be at your best
9. Always be over prepared never under prepared.
10. Push your self to your limits never to anyone else's limits.
11. Never judge anyone on how the look.
These rules are simple and there is more then what you see, I follow in my everyday life someone wants to talk about me I smile and nod my head saying "ya but I know who I am its just that you don't know" I haven't had friends till I was 18 my year in high school. I have been hit on and picked at but I am still here strong with my dad behind me I am living life like I want (only a little held back but its fine lol) ^^
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Permalink Reply by Sickle Cell Warrior on
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Why do you call them the Wolven rules?
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Hey Ebony, before I got on Nicosan, my knees used to hurt almost all the time. I walked with a limp when I went to work, as long as it wasn't both knees, I could handle it. I used BenGay to control it, numb out the pain, and also wore those heat wraps under my clothes. It's just another thing we sickle cell warriors live with.
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I call them the wolven rules because its how a pack lives my family is my pack my friends are my pack I lived by these rules since I was about 12 i was shown my first wolf by my big sis and i started to do research of wolves lol I now have a wall of wolves (pictures that I like of course of wolves lol).
The heating pads worked for a while for me but as im working I cant go very long with out getting sick due to the cold weather and my asthma its crazy. I tried to tough it out but my chest started to ache with this pay check coming up I am gonna get my self ready for winter so I can follow rule numbers 3,9, and 10. I just hope I don't end up in the hospital its been a good three years since my last visit and it made my dad so happy but then on edge I am on the hydroxy.
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