A community for people living with sickle cell disease and also open to those with the trait and families. Follow us on twitter: @sikcell

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Created by Ade Dotun May 29, 2008 at 8:33pm. Last updated by Ade Dotun Jul 26, 2016.

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Latest Activity

Tramine is now a member of People living with Sickle Cell
May 10
candace brinker commented on Ebony Ravenell's blog post Why must we be treated like criminals or addicts?
"Basically because Sickle Cell is a black disease...that pretty much rely on opioids to relieve extreme pain. They’ve never felt our level of pain....so they don’t care. Therefore because we consistently need pain meds and we’re…"
May 7
stephen posted a status
"i wanted to get married to a warrior but didn't materialize.my parent wont give their blessing to the union.i cannot imagine how many warrio"
May 4
Bukky Ade liked Ade Dotun's event Public Meeting on Patient-Focused Drug Development for Chronic Pain
May 2
Ebony Ravenell commented on Ebony Ravenell's blog post Why must we be treated like criminals or addicts?
"Hey Ali, Hows it hanging! Yea im here in Philly, and they say my doc is the top adult heme person to go too but its become clear to me now that he doesn't give a damn about me. When I was released from the hospital he told me he wanted my…"
May 2
Ali commented on Ebony Ravenell's blog post Why must we be treated like criminals or addicts?
"Hello Ebony, I'm sorry to hear what you are experiencing. I too have experienced attitudes from medical personnel who treat sicklers like drug seekers. I would suggest that you find a new hematology group. My doctors know me and how to treat my…"
May 2
Ali shared Ebony Ravenell's blog post on Facebook
May 2
Lisa Fryar Woodson liked Ebony Ravenell's blog post Why must we be treated like criminals or addicts?
May 1
 
 
 

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