People living with Sickle Cell
We still Hope
A community for those living with sickle cell disease and also open to those with the trait and families. Follow us on twitter: @sikcell
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Notes
Welcome
Hello and welcome to a community for those living with sickle cell, this is a place where you can share your experiences and help to encourage each other while doing so, cause we all know how hard it can be some times.
Brief summary:
Sickle cell anemia is a serious condition in which the red blood cells can become sickle-shaped (that is, shaped like a “C”).
Normal red blood cells are smooth and round like a doughnut without a hole. They move easily through blood…
ContinueCreated by Ade Ddot Ade May 29, 2008 at 9:58pm. Last updated by Ade Ddot Ade yesterday.
Notes Home
Welcome to Notes. Continue
Created by Ade Ddot Ade May 29, 2008 at 8:33pm. Last updated by Ade Ddot Ade Mar 31, 2009.
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Power Training
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Footwork Practice
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Latest Activity
Blog Posts
Singer Celine Dion Cares About Children With Sickle Cell
Posted by P.Allen Jones on January 26, 2012 at 12:07am 0 Comments 1 Like
A question for the younger men and women with SCD
Posted by Elisa Tyson on January 22, 2012 at 9:51pm 1 Comment 0 Likes
Hello everyone..I am a parent of a 17 year old son with SCD type SS. He has had a fairly healthy life thus far. He has had his gall bladder removed, pnuemonia twice and two pain crisis in his life. First, I want to thank god for his health thus far and moving foward. I had a question for the younger men and women who suffer from this disease. My son has applied to several different colleges to include a college in GA. I currently live in NC and his father is currently in the military in…
Continue New Year Resolutions
Posted by P.Allen Jones on December 16, 2011 at 1:30am 0 Comments 0 Likes
AVN, SCD, RA
Posted by Austyn Hart-Tinsley on December 4, 2011 at 5:49pm 5 Comments 0 Likes
I have Avascular Necrosis of both Hips and Rheumatiod Arthiritis in my right elbow (I'm right handed so this effects me a great deal) and left knee and Sickle Cell SS. I have been to many doctors and specialist. I have had two surgeries in three months and I might need another one. I'm also on a butt load of medications. I do what I can to keep going but the pain NEVER goes away. Constant back and hip pain all the time. Did I forget to mention that in February I lost feeling in my lower face…
Continue Iron Overload Danger
Posted by P.Allen Jones on December 1, 2011 at 1:41am 0 Comments 0 Likes
Iron Overload (IO) is a big deal and can cause life threatening complications. Find out more at Our Voice and get transfusion smart.
Forum
How to get threw to this knuckle head lol
Started by toya tribble. Last reply by Kiara Owens Jan 16. 1 Reply 0 Likes
No "Magic Pill" for SCD
Started by GL Wilbert. Last reply by P.Allen Jones on Thursday. 5 Replies 0 Likes
Pulmonary Hypertension
Started by Remona Fox. Last reply by P.Allen Jones on Thursday. 1 Reply 0 Likes
Hip Replacement
Started by Fahid Rabiu. Last reply by P.Allen Jones on Thursday. 12 Replies 0 Likes
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