Sikcell: People living with Sickle Cell

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Newly diagnosed

My son was newly diagnoses with HBSS 5 months ago and has had sequestration crises twice. asides that he lives a normal life like his sister but I am in constant fear that sickle cell might mean a death sentence or having a short life. can a sickle cell patient like a normal life with minimum pain

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Permalink Reply by Ade Dotun on February 9, 2016 at 7:08pm

Hello Funmi, welcome to the community. sorry to hear about your son having a few crisis, I hope he is doing better now. There are many of us here that live a close to 'normal' life here, we just have to be careful in our day to day activities, making sure to drink enough water, etc. I would recommend seeing an hematologist to help monitor his health. Check out the parents group here and also another related forum from other mothers:

http://sikcell.com/forum/topics/mom-to-a-newborn-with-sickle-cell

http://sikcell.com/group/parents