Sikcell: People living with Sickle Cell

We still Hope

Observing Households with SCD

Anyone know SC'D or thalassemia of Asian, Latino or Middle Eastern diversity? Want to spend time and observe the Day in the Life" of those dealing with condition so I can write better communication tools for they and their professionals. Prefer Fl. or NV. location week of Jan 6-10,2014 but will fly to meet you elsewhere. Paying $225.00 for your time.

Hope we can help each other.

Respectfully,

866-766-5077-Judy

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Permalink Reply by Yoseph on January 2, 2014 at 8:21am

Hello Judith,
I am not sure if Im of help but i am a mother to a sickle cell diseased child and a middle eastern. However I do not live in the states. I wonder if we can perhaps do this through emails or over the phone. And I am not interested in the payment and would love to do this for free. Let me know!