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Permalink Reply by nicole peterson on January 23, 2013 at 1:14am

hello Kieran i experience that as well something about when the body began to settle down, the pain intensifies. It is a horrible feeling. it makes you want to keep moving so you don't feel the pain as much....but we cant move forever at some point we have to rest...that's when i HAVE to break out the pain meds and hope to God they work

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Permalink Reply by Thomas Logan on January 24, 2013 at 4:59pm

Yeah my pain usually starts when I am sleeping whenever I have a crisis it always starts when I wake up. ( And cool a Doctor Who Fan!!! lol)

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Permalink Reply by Jaygo on January 24, 2013 at 5:14pm

i also notice, for some strange reason, it happens more so when i'm sleep or relaxed oppose to being up and about.

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Permalink Reply by Candace Brinker on February 2, 2013 at 9:18am

I'm the exact same way, if I'm up moving, I'm fine. As soon as I lay down, my joints start hurting. It's crazy....it's like a no win situation!

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