Ade Dotun

Male

Alexandria, VA

United States

Profile Information:

Profession
Marketing
Hobbies
Videogames, Movies, Music and Computers
How did you find this site?
Created it
How has living with sickle cell made an impact on your life?
Its made me who I am today and thought me how to push thru in the face of adversity and pain.
What are you hoping to gain by joining the site?
Life long connections
Your Website
http://twitter.com/#!/sikcell

Comment Wall:

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  • sandra

    Thank you!

     

    Apr 8, 2011

  • Tameca Brown

    Thank you very much. i pray daily that it does remain that way. in the mean time i ensure that her diet is healthy and also that she has plenty of fluid which is more water than juice. I started this trend from she was diagnosed from she was 6 weeks old.

    May 9, 2011

  • Ebony Ravenell

    thanks ^^

    May 16, 2011

  • P.Allen Jones

    Lightheaded...yeah. Sometimes, I start to fall like a tilt  /_ and I really don't get it????

    Jun 3, 2011

  • Marcus McKinley

    Thank you bro, anything I can do for my fellow warriors! Thank u for creating the site.

    Jul 14, 2011

  • SIMI Simon

    thank you for the request am happy to hav found this site,let work hand in hand any way we can and togetha will do gret things.

    Sep 10, 2011

  • Jennifer Fletcher

    Red Ribbon

    Sep 11, 2011

  • Jennifer Fletcher

    Hi there! Zoey is doing better. She had a mini crisis in her left hand this week, but the swelling is going down and she's tolerating the pain with Tylenol with Codeine. So far so good. Thanks for asking :-)

    Sep 12, 2011

  • Kamba SAMUEL

    Hi Ade.
    I am Kamba from Kampala Uganda. I am a sickler too but i know that, that is not the end of the world. Please tell me more about your self. I am interested in being your friend.

    Oct 18, 2011

  • simone uwan

    Thank you! Two years later! Lol

    Dec 24, 2011

  • P.Allen Jones

    Ade, As we approach 2012 I just want to thank you for all your work to create and promote this site AND gather people living with sickle cell in one place. Keep up the good work!!!! 

    Dec 26, 2011

  • тнe ѕιcĸle cell ĸιd :p

    hey

    Apr 21, 2012

  • тнe ѕιcĸle cell ĸιd :p

    im cool ,  You?

    Apr 21, 2012

  • тнe ѕιcĸle cell ĸιd :p

    I'm okay , a bit unwell though ;/

    Kenya is fine , just really cold.

    Where are you from?

    Apr 23, 2012

  • Pam

    thank you for the welcome and the compliment on the videos :)

    May 29, 2012

  • udochu, nnennaya

    hello,

    Break the code foundation is a support group in Nigeria whose mission is to get through a legislation to protect people living with sickle cell from discrimination in the work force, schools and society at large. Can they be helped. I hope you are much better now.

    Jun 26, 2012

  • saadiyayusuf900

    Thank you! Glad you liked reading it :)

    Jul 31, 2012

  • Nina

    Hi Ade,

    Hope all is well with you and yo are pain free!!!!

    My husband and I just posted on Youtube a video of our son, who has SS and is a very active little one.He just turned 4years old on the beginning of August. In this video he is doing one of his hobbies - he likes to conduct! Also he plays violin, does karate, and math/reading at Kumon. He is for sure a busy little buddy. And he enjoy all his activities.

    We would appreciate your support, please check it out and feel free to give us your feedback and forward it.

    Sant Family

    http://youtu.be/DeNEr1kK6Es

    Aug 21, 2012

  • Kiara Owens

    Just saying hello!

    Oct 10, 2012

  • pradeep

    First of all ,really thank full to ade for creating this site and people leaving sickle cell together on this platform

    Oct 29, 2012

  • Pam

    Thank! how'd you know? Im guessing you are subscribed to the youtube channel?

    Jan 15, 2013

  • nicole peterson

    thanks I really appreciate that... i have suffered for so long without anyone to talk to about the pain i go through, it's really comforting to have some one who understands the frustration that comes along with this decease.

    Jan 22, 2013

  • Pam

    Hi Ade,

    I was trying to donate using the donate option but I am getting an error message, Is there another way?

    Feb 14, 2013

  • Austyn Hart-Tinsley

    If you wouldn't mind letting us know how you feel after you try the bath salts that would be great to see how others with SCD think of them.

    Apr 27, 2013

  • Pam

    Hey Ade, I'd like to go to the next Science Cafe. How far in advance is it usually scheduled?

    Jan 16, 2014

  • Bre

    Thank You soooo Much!!!!!

    Jan 27, 2014

  • Hakeem Alfareed

    Hi.i am seeking for an advice or opinion. 

    Apr 3, 2014

  • Phil Anderson

    Hey, hows it going?

    Sep 22, 2014

  • Phil Anderson

    I'm great bro. USMLE killing me!

    Sep 22, 2014

  • Pam

    I like the new format! I'm probably so late tho...lol

    Jan 7, 2015

  • Arkiesha Branch

    thankss , sorry im late.

    Dec 8, 2015

  • Carl Kollmer, Pfizer

    Hi Ade - I just posted some questions for discussion.  I love the design of your website - it was well thought through!

     

    I was wondering - did you attend last year's NIH, 2-day meeting around SC & engaging the community, or view the webcast?  If not, here are links; these were excellent in my opinion, much better than the FDA community engagement meeting (held in 2014 I believe). 

    I have two questions around the NIH webcast:

    - Would you be willing to publish the links on your website?

    - Why do you think turnout was so low?  I recall that last time I looked, for one day there were only about 350 people that had tuned into the webcast (I assume this was at the time of the event and does not count 'replays'). 

     

    http://videocast.nih.gov/Summary.asp?File=19085&bhcp=1

     

    http://videocast.nih.gov/Summary.asp?File=19087&bhcp=1

     

    Are you considering going to the NIH-NHLBI annual SC meeting in June?  Registration is free. 

    Thanks Ade!

    Kind regards,
    Carl

     

    Feb 20, 2016

  • Sujata

    Dear Admim,

    Thank you for the Welcome and this site has been long needed! Congrats to you for finding the need and taking initiative (the follow through: to fill the need) by connecting so many of us together through the use of IT. Information Technology gets such a bad reputation as being unhealthy for our bodies, yet we all need support, both healthy and unhealthy, but it's sometimes harder for those of us keep living with our invisible (many times inconvenient and sometimes crumbling) pain episodes to keep in touch one on one with family or close friends. Unfortunately, sometimes even those whom love us are worn out too by being our caregivers and are almost afraid to admit they need a break too! Thanks for allowing (also a brilliant idea I might add) to have those whom want to learn and educate themselves from our point of view! Although, it may only be aquated to a single star in our own Galaxy of daily living with this illness at least it's a light in the darkness and can acknowledge for ourselves we are not alone...if we just speak up or just listen to others...nor were we ever!

    In thoughts and prayers.
    Always,
    Sujata

    Mar 23, 2016

  • Arkiesha Branch

    Thank you.

    Apr 15, 2016

  • Lashawn Hutchinson

     THANK YOU FOR THIS SITE!! I AM JUST GETTING AROUND TO LOOKING AT IT ALL AND I AM SO VERY PROUD TO BE A PART OF YOUR FAMILY. 

    May 11, 2016

  • Adedoyin

    Thank you.
    I guess you created this platform. Great. God bless you.

    Jul 7, 2016

  • Marcus McKinley

    Thank you brother

    Jul 11, 2016

  • Teela Mae

    do you have sickle cell? if so when were you diagnose?

    Sep 23, 2016

  • Adeleke Samson

    Thanks so much Ade

    Nov 30, 2016

  • Fola O

    Thank you!!

    Mar 29, 2017

  • bukky

    Hey ade, can you send me an email please. I work with the Sickle Cell Aid Foundation in Nigeria and I would like us to work on some things together. It's bukky_bolarinwa@yahoo.com. Cheers

    Apr 24, 2017

  • Carlyle

    Saw your post about getting into UT grad school. Congrats! Austin has a pretty good network since the Sickle Cell Assoc of Texas Marc Thomas foundation is based there. They are a good group that I've helped out with before. I live in Houston but I'm in Austin regularly since I have family there. Best of luck with the move and if you need anything let me know.

    Jul 26, 2017

  • Sujata

    Hey Ade,

    It’s Sujata here...long time since been on here... was wondering do you know about the lates research currently at NIH for a pill medication for adults with SCA already in phase 2 one last phase and it’s ready for FDA approval that any hematologist can prescribe and the patient can pick it up! It might be doctor has to apply to a specialty Pharmacy. however for those adult like me living with SCA and no chance at stem cell transplant due to no blood relatives (since I’m adopted) also I’m not a candidate for a liver transplant even though my liver is at 1/2 function from Cirrosis (as you know iron-overload)!

    This new pill will be able to change the morphology of all the sickle cells! It’s like cancer but only positive it targets the red cells in the bone marrow level that are predestined to be sickle and changes them before sent out in circulation to be come more oval like shape and size! Then the pill helps to make an over population so as to overwhelm any stragglers of sickle cells whom don’t change but the percentage is very low thacould be wrobu
    Therefore these new (non sickle cells) will have not pointed parts to what I like to call ‘traffic jams’ especially around the joints, but as you know a crisis can happ anywhere at anytime even when we think we having a great day! The oval shape allows it to carry more O2 through out the system he and resolving other flowing issues such as preventing clots .

    Amazing right a true miracle at least for me! And I thank God I’m was born in this generation with science and technology.

    Nov 15, 2017

  • Apollo Clefton Raymond

    Thank you for letting me be here.

    Jan 31, 2018

  • Angela Edebiri

    Thanks Ade, had a lovely day. 

    Sep 13, 2018

  • Fahid Rabiu

    Thanks Bro. Had a wonderful day.

    Oct 20, 2018

  • Feyi Goke

    Thank you for accepting me into the forum. 

    Jan 12, 2019

  • Tamica Ennis

    Thank you for the birthday wishes. I’m well

    Aug 16, 2019

  • David Chester

    Thank you for your Birthday Wishes, I'm well as can be thank God. :)

    Jan 17, 2020

  • Preston

    I am doing very well! Blessed! Thank you very much! Hope you are doing well also!

    Feb 5, 2020