Yeah, I saw your name, it sounded Brazilian (lol). I'm Brazilian as well. I was reading your story, and it sounded so much like mine. I found out my son had sickle cell after a week he was born and he is now 9 months old too. It was the hardest months, the first 5 months of his life. Not by him getting sick, but the news, how to deal with it, looking for answers....everything. What city are you from Brazil? I look for a lot answers there too.
When I was pregnant, I did the blood tests that the doctor asked for, and I found out I had the trait. By then, I didn't even know what was sickle cell disease. Then, I freaked out, because and you read about it, there is so many painful things that may happen. Right after we finding out my husband was tested, and he doesn't have neither the disease nor the trait. So, we were relieved. So, when they called us, I was so upset. I told them, there was no way he could have sickle cell. But, they assured to me that he had it. They explained that sometimes the person has a different kind, like talassemia and. So, we went to he first appointment at Children's Hospital. I asked them what kind he had, but they said it was too early to find out. Just when he turned 1 year old. There is no way I was going to wait that long. I told them to test my husband. Because, if I have the AS, my husband would be he decisive case. They agreed and my husband did test, which it took forever for the doctor to call me back with the results. I as the one calling and bothering. When we saw them again, she said she had at her table but there was no reason to call, because she was going to see us in person anyway ( after 2 months). I don't think they understand what we go through. The agony and everything else. To them it is like nothing. It really makes me mad.
Does the carao work? How are giving him folic acid? breaking on the food?
No, He never had anything. He has sickle cell with HPFH. I have a friend in Brazil that the doctor didn't give them an answer until now and can you believe the baby is almost one year old. He is not even on Penicillin. I'll definitely call you.
Paula Matias
May 30, 2009
Paula Matias
When I was pregnant, I did the blood tests that the doctor asked for, and I found out I had the trait. By then, I didn't even know what was sickle cell disease. Then, I freaked out, because and you read about it, there is so many painful things that may happen. Right after we finding out my husband was tested, and he doesn't have neither the disease nor the trait. So, we were relieved. So, when they called us, I was so upset. I told them, there was no way he could have sickle cell. But, they assured to me that he had it. They explained that sometimes the person has a different kind, like talassemia and. So, we went to he first appointment at Children's Hospital. I asked them what kind he had, but they said it was too early to find out. Just when he turned 1 year old. There is no way I was going to wait that long. I told them to test my husband. Because, if I have the AS, my husband would be he decisive case. They agreed and my husband did test, which it took forever for the doctor to call me back with the results. I as the one calling and bothering. When we saw them again, she said she had at her table but there was no reason to call, because she was going to see us in person anyway ( after 2 months). I don't think they understand what we go through. The agony and everything else. To them it is like nothing. It really makes me mad.
Does the carao work? How are giving him folic acid? breaking on the food?
May 30, 2009
Paula Matias
No, He never had anything. He has sickle cell with HPFH. I have a friend in Brazil that the doctor didn't give them an answer until now and can you believe the baby is almost one year old. He is not even on Penicillin. I'll definitely call you.
Take Care
Jun 2, 2009
loyses
Aug 31, 2009