My daughter came home yesterday. She is doing a lot better. She is so glad to be home. Thanks everyone for the prayers.
Added by Sharolyn Hutchinson on December 30, 2009 at 9:03pm —
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My daughter is back in the hospital. She started with pain and last night she had a fever. She did get to open her presents but then we had to take her to the hospital. Hopefully she wont be there that long. Everyone please pray for her. Thanks.
Added by Sharolyn Hutchinson on December 25, 2009 at 9:35pm —
4 Comments
HELLO EVERYONE:
I WANTED TO WISH YOU A MERRY CHRISTMAS AND HAPPY NEW YEAR. I HOPE EVERYONE IN GOOD HEALTH TO SPEND TIME WITH FAMILY AND FRIENDS.
Added by etta on December 23, 2009 at 7:53pm —
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The airways are popping. The media blitz is in full affect. Massive editorial posts have been sent all over the internet. The word is out. There
MAY be a cure for Sickle Cell Disease.
According to a New England Journal of Medicine report dated December 10, 2009, researchers say that a new method of bone marrow transplantation cured nine out of 10 adult patients with sickle cell disease.
Researchers gave 10 patients ages 16 to 45 bone marrow stem cells. They gave…
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Added by P.Allen Jones on December 22, 2009 at 11:46am —
6 Comments
I was just wondering how long does everybody's crisis normally last. I have seen post where people have said there crisis last for minutes of hours. My daughters crisis lasts for like 4 to 5 days. Is this normal or abnormal? Please let me now. Thanks
Added by Sharolyn Hutchinson on December 19, 2009 at 10:08pm —
4 Comments
I lie wide awake in my bed unable to get a wink of sleep or even stay in one place for 30 seconds. Freezing cold and shivering even though I'm sweating with clammy skin and the room is 78degree. The pulsating, banging sensation at my joints refusing to stop or at least slow down, whether I like it or not the pain continues to come like clockwork. There doesn't seem to be enough air in the room to fill my lungs and as I continue to struggle with the deep breathing excersise that sometimes helps,…
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Added by Tracy H. on December 18, 2009 at 6:00am —
4 Comments
Our Documentary needs faces!
We have a collage we're featuring in our film of Sickle Cell Survivors! If you would like to have your picture featured in our film during our collage of Sickle Cell Survivors Contact Us! We'd Love to have you! Let the world know you have Sickle Cell, Sickle Cell does not have you.
The process is simple:
Email us stating your interest
We forward you a release form
Take a cool picture of yourself, scan it and submit it to us as a jpg or…
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Added by Keda B. Reel on December 17, 2009 at 8:30am —
2 Comments
Hello, for those of you who have not viewed the information from NBC Nightly News about the latest breakthrough in bone marrow transplantation for ADULTS, here is my take and the link to the article and corresponding video. I know that others have posted Dr. Fleming's story, but he is also featured in this NBC Nightly News broadcast:
http://www.msnbc. msn.com/id/ 34352186/ ns/health- more_health_ news/
Hello, Sickle Cell Friends and Family! I…
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Added by B. Jewell on December 12, 2009 at 6:47pm —
2 Comments
Do you guys find it hard to get
Medical Insurance when you have sickle cell? I have a friend who may be traveling. She is looking into
Travel Health Insurance, but is not sure if her diagnosis will hinder her acceptance. What advice would you give to her? Should she attempt to get coverage. An extended stay in an overseas hospital is…
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Added by Cindy Fallsen on December 11, 2009 at 9:21am —
1 Comment
We will be celebrating 100 years since the discovery of Sickle Cell Anemia and it's about time that we give our disease an adult face and voice. Although we have our Poster Child we also need something that symbolizes the adults living with the disease. Join me in my campaign to make SCD Soldiers the new identifier for adults with the disease. Become a SCD Soldier and become a part of the grand celebration in September 2010.
We are recruiting Support Soldiers and Front-Line Soldiers.…
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Added by Phyllis Thomas on December 9, 2009 at 7:50pm —
3 Comments
Does anybody have any tips on how to stay positive when you have SSC and it's causing other health problems? Lately, I've been thinking a lot about my disease and the other problems it's causing. My goal is to live a long fufilling life with my husband and daughter, but sometimes it gets really overwhelming I begin to think of the worst. I pray and pray, but it's been hard.
Added by Sherrelle on December 9, 2009 at 4:40pm —
1 Comment
I am trying really hard to do as the Good Book says, Be joyful in hope…faithful in prayer, but what I really feel right now is OVERWHELMED! I have been getting my hands dirty...
so to speak...trying to make a difference in our community. This past weekend I had my very first board meeting with FACE Foundation Inc. and all I can say is
WoW!!
There is so much that needs to be done that I find myself wondering if I can
really make a difference. There…
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Added by Kim Davis on December 8, 2009 at 9:45pm —
1 Comment
Since this is the perfect place to share information
and more importantly, in effort to support
one of our own, I invite you to check out Dominique Friend.
Dominique is an activist and advocate who is doing her part to raise awareness and funding to support improved treatment for those living with Sickle Cell. She has authored a book that has captured the essence of the daily struggles and unpredictability of SC. The book is titled
SICKLE,
A Story of… Continue
Added by Kim Davis on December 7, 2009 at 9:49am —
1 Comment
Hello Sickle Cell Famz!
I've been getting alot of emails at sicklecelldiva@gmail.com and my blog
www.sicklecelldiva.com....asking me what do I eat and how do I handle my day to day living with sickle cell. Well I've decided to give you some basic information that will hopefully help you and make your sickle cell living more comfortable.
((Eating))
I avoid as much processed foods as possible. I do however eat…
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Added by LaNora on December 6, 2009 at 6:00pm —
3 Comments
Hi there Sickle Cell Famz!! Well its getting cold and if you have pain like me...if its too cold a crisis can start..if its too hot a crisis can start. So with that said get your gloves, hats, scarfs and warm jackets ready!! And I also like to wear that funny looking bike-riding gear under my clothes (Zappos.com) It makes a great 2nd layer of skin if u dont want to wear a heavy coat. Also dont forget that heating blanket..although "moist" heat is the best heat for us Sickle Cell Smart folks!…
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Added by LaNora on December 4, 2009 at 4:00am —
2 Comments
Hello everyone, my name is Angela and my daughter has sickle cell and my other daughter has the trait and will both will be getting tested for bone marrow to see if their marrow is a match. My daughter is not sure she would want to go thorugh with the marrow, she is afraid and I understand her fear, for over 16 years ; she has lived with this illness its a part of her, the fear is more what would she be without it. I do not want to make a decision for hear it her body, I have faith either way…
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Added by Angela Davis-Beckford on December 3, 2009 at 10:47pm —
4 Comments
Do you go to the hospital everytime your in crisis? My daughter has been in crisis for three days, She is eating and drinking, and I am using pain meds to control pain. She says she really dont want to keep going to the hospital. Any suggestions
Added by Sharolyn Hutchinson on December 3, 2009 at 5:47pm —
5 Comments
I believe my daughter has a mild case of Sickle Cell, compared to me. I pray to God she does not have to endure the severe pain that comes with having a pain crisis. She has been hospitalized a few times and has done very well! She is ony 6. Please keep her in your Prays........
Added by crystal on December 2, 2009 at 11:11am —
1 Comment
It's been quite some time since I've been in a relationship at least six years. I start to wonder what seems to be the problem?? I meet alot of guys but they never seem to stick around past the getting to know you phase, then it hits me that things always fall apart the moment I get sick and they see the other side of my life that I deal with. Yeah they try to be sensitive but somewhere along the way they just don't have any genuine concern except when is the old Chasidi gonna be back to her…
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Added by Chasidi Poole on December 1, 2009 at 6:01am —
10 Comments