Sikcell: People living with Sickle Cell

We still Hope

June 2009 Blog Posts (3)

Keeping the Faith

Hello All,

I wish that we could schedule a time when we sign on and chat about whatever is on our minds. Is anyone else interested in this idea? I like reading the comments, but I would like something in real time. I realize that we are all over the world, but some nights I am up late when I can't sleep.

The title of the blog is keeping the faith, but somedays are harder than others. I know that I am blessed. I haven't had a stroke or a hip replacement. However, this… Continue

Added by Ali on June 26, 2009 at 5:00pm — 2 Comments

This stupid disease

Hi everyone, I am Nikki I am new to this. I have hgb SS. I am a 36 year old female. Ihave had 4 strokes, and I have CHF and have compression fractures in my back. I live in the Washington DC metro area. I have a college degree and worked full time for about 9 years. I started my own business. I still work when I am able to but I have been getting sick alot lately. I hide my pain from my family because I hate hearing them tell me that ohhh its only in your head. I am soo tired of them telling me… Continue

Added by Nikki Peterson on June 19, 2009 at 10:52am — 3 Comments

Pain in Tears

Scars that bind

Tears that fasten me to u

Our pain unites us

So be true to this emotion

live without shame your wounds

Carry your head high as the tears flow.

Let the tears fall and express your pain

without reservation, without regret

because the more we share our pain

the closer we become.

Pain shared is real, true, pure

I can’t fake pain, so why do I try to hide the most true part of who I am?

Why are we so ashamed of that which… Continue

Added by Sickle Cell Warrior on June 8, 2009 at 6:44am — 3 Comments